Institution at which the work was carried out: University of Malaya, Kuala Lumpur, Malaysia.
Care demands on mothers caring for a child with Down syndrome: Malaysian (Sarawak) mothers' perspectives
Article first published online: 26 MAR 2014
© 2014 Wiley Publishing Asia Pty Ltd
International Journal of Nursing Practice
Volume 21, Issue 5, pages 522–531, October 2015
How to Cite
Chan, K. G., Lim, K. A. and Ling, H. K. (2015), Care demands on mothers caring for a child with Down syndrome: Malaysian (Sarawak) mothers' perspectives. International Journal of Nursing Practice, 21: 522–531. doi: 10.1111/ijn.12275
- Issue published online: 27 OCT 2015
- Article first published online: 26 MAR 2014
- Manuscript Accepted: AUG 2013
- University of Malaya. Grant Number: IPPP/UPDiT/Geran (PPP)/PS171/2008C
- care demands;
- Down syndrome;
- experiences of mothers
This paper examines the experiences of mothers caring for a child with Down syndrome in the Malaysian (Sarawak) context. Qualitative interviews were conducted with 26 biological mothers of children with Down syndrome aged 18 years and below. They were accessed through selected child health clinics, community-based rehabilitation centres and schools using purposive sampling within two regions in Sarawak, one of the two Borneo States of Malaysia. Major themes emerging within the context of care demands were children's health, developmental delays, daily needs and behaviour issues. The insights obtained into the care demands experienced by mothers of children with Down syndrome have several implications for practice by care professionals.