Ways of Experiencing the Life Situation Among United States Patients With an Implantable Cardioverter-Defibrillator: A Qualitative Study

Authors

  • Kärstin Bolse MSc, RNT,

    1. From the School of Social and Health Sciences,
      Halmstad University, Halmstad, Sweden;1
      Department
      of Medicine and Care, Linköping University, Linköping,
      Sweden;2
      the Centre for Nursing Research,
      Rikshospitalet, Oslo, Norway;3
      Massachusetts General
      Hospital, Boston, MA;4
      University of Massachusetts-Lowell, Lowell, MA;5 and the Department of Nursing,
      Lund University, Lund, Sweden6
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  • 1,2 Glenys Hamilton DNSc,

    1. From the School of Social and Health Sciences,
      Halmstad University, Halmstad, Sweden;1
      Department
      of Medicine and Care, Linköping University, Linköping,
      Sweden;2
      the Centre for Nursing Research,
      Rikshospitalet, Oslo, Norway;3
      Massachusetts General
      Hospital, Boston, MA;4
      University of Massachusetts-Lowell, Lowell, MA;5 and the Department of Nursing,
      Lund University, Lund, Sweden6
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  • 3,4 Jane Flanagan PhD, RNCS,

    1. From the School of Social and Health Sciences,
      Halmstad University, Halmstad, Sweden;1
      Department
      of Medicine and Care, Linköping University, Linköping,
      Sweden;2
      the Centre for Nursing Research,
      Rikshospitalet, Oslo, Norway;3
      Massachusetts General
      Hospital, Boston, MA;4
      University of Massachusetts-Lowell, Lowell, MA;5 and the Department of Nursing,
      Lund University, Lund, Sweden6
    Search for more papers by this author
  • 5 Diane L. Caroll PhD, RN,

    1. From the School of Social and Health Sciences,
      Halmstad University, Halmstad, Sweden;1
      Department
      of Medicine and Care, Linköping University, Linköping,
      Sweden;2
      the Centre for Nursing Research,
      Rikshospitalet, Oslo, Norway;3
      Massachusetts General
      Hospital, Boston, MA;4
      University of Massachusetts-Lowell, Lowell, MA;5 and the Department of Nursing,
      Lund University, Lund, Sweden6
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  • and 4 Bengt Fridlund PhD, RNT 1,6

    1. From the School of Social and Health Sciences,
      Halmstad University, Halmstad, Sweden;1
      Department
      of Medicine and Care, Linköping University, Linköping,
      Sweden;2
      the Centre for Nursing Research,
      Rikshospitalet, Oslo, Norway;3
      Massachusetts General
      Hospital, Boston, MA;4
      University of Massachusetts-Lowell, Lowell, MA;5 and the Department of Nursing,
      Lund University, Lund, Sweden6
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Kärstin Bolse, MSc, RNT
School of Social and Health Sciences, Halmstad
University, P.O. Box 823, S-301 18 Halmstad, Sweden
E-mail: karstin.bolse@hos.hh.se

Abstract

The purpose of this paper is to describe how a selected group of United States patients with an implantable cardioverter- defibrillator perceived their life situation. A qualitative design based on the phenomenographic approach was chosen to describe the patients' conceptions of their life situation. Fourteen patients—eight men and six women, aged 21–84—were strategically selected to obtain as broad a variation as possible. The descriptive categories to emerge from the analysis of the interviews were trust, adaptability, and empowerment. The category labeled trust describes how patients trusted in the organization around them. The category labeled adaptability describes how patients adapted to living with an implantable cardioverter-defibrillator device. The category entitled empowerment describes how patients considered that they received support from family and friends as well as from health care professionals. This study suggests the need for a holistic intervention program comprising family, work, and leisure, focusing on patients' future life situation.

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