Supported by the National Cancer Institute under grant no. 263-MQ-418286-1.
Use of Health-Related Online Support Groups: Population Data from the California Health Interview Survey Complementary and Alternative Medicine Study
Article first published online: 14 APR 2010
DOI: 10.1111/j.1083-6101.2010.01501.x
© 2010 International Communication Association
Additional Information
How to Cite
Owen, J. E., Boxley, L., Goldstein, M. S., Lee, J. H., Breen, N. and Rowland, J. H. (2010), Use of Health-Related Online Support Groups: Population Data from the California Health Interview Survey Complementary and Alternative Medicine Study. Journal of Computer-Mediated Communication, 15: 427–446. doi: 10.1111/j.1083-6101.2010.01501.x
Address reprint requests to Jason E. Owen, Ph.D., M.P.H., Department of Psychology, 11130 Anderson St., Loma Linda University, Loma Linda, CA 92350; email: jowen@llu.edu. Phone: (909) 558-7705. Fax: (909) 558-0171.
Publication History
- Issue published online: 14 APR 2010
- Article first published online: 14 APR 2010
References
- , & (1973). Societal and individual determinants of medical care utilization in the United States. The Milbank Memorial Fund Quarterly: Health and Society , 51, 95–124.
- , , , , , & (2005). Internet-based self-help for depression: randomized controlled clinical trial. British Journal of Psychiatry, 187, 456–461.
- , , , , , , , & (2006). Internet-based self-help with therapist feedback and in vivo group exposure for social phobia: A randomized controlled trial. Journal of Consulting and Clinical Psychology, 74, 677–686.
- , , , , & (2002). Do Internet-based support interventions change perceptions of social support? An experimental trial of approaches for supporting diabetes self-management. American Journal of Community Psychology, 30, 637–54.
- , , , , , & (2006). Relationship of Internet health use with patient behavior and self-efficacy: Experiences of newly diagnosed cancer patients who contacted the National Cancer Institute's Cancer Information Service. Journal of Health Communication, 11, 219–36.
- , , , , , , (2007). Use of the Internet to communicate with health care providers in the United States: Estimates from the 2003 and 2005 Health Information National Trends Survey (HINTS). Journal of Medical Internet Research, 9, e20.
- , , & (1999). Professional and paraprofessional group treatments for depression: A comparison of cognitive-behavioral and mutual support interventions. Journal of Consulting and Clinical Psychology, 67, 491–501.
- , , , & (2006). Hypersisters online: Social support and social comparison among hysterectomy patients on the Internet. Annals of Behavioral Medicine, 31, 271–278.
- , , & (1998). Health communication on the Internet: An effective channel for health behavior change? Journal of Health Communication, 3, 71–9.
- , & (2004). Characteristics of online and offline health information seekers and factors that discriminate between them. Social Sciences & Medicince, 59, 1795–1806.
- (2005). Receiving social support online: An analysis of a computer-mediated support group for individuals living with irritable bowel syndrome. Cyberpsychology & Behavior, 8, 580–584.
- , , & (2007). Social support in cyberspace: A content analysis of communication within a Huntington's disease online support group. Patient Education & Counseling, 68, 173–8.
- , , , & (2005). Group based training for self-management strategies in people with type 2 diabetes mellitus. Cochrance Database of Systematic Reviews, 18, CD003417.
- , & (2005). A randomized controlled trial of an internet-based treatment for chronic headache. Behaviour Research and Therapy, 43, 277–292.
- , , , , , , (2003). Group cognitive-behavioral therapy for generalized anxiety disorder: Treatment outcome and long-term follow-up. Journal of Consulting and Clinical Psychology, 71, 821–5.
- , , , , , , , (in press). Use of computers and the Internet for health information by patients with epilepsy. Epilepsy & Behavior.
- (2008). The engaged E-patient population. Pew Internet & American Life Project, retrieved April 7, 2009 from http://www.pewinternet.org/Reports/2008/The-Engaged-Epatient-Population.aspx.
- , , et al. (2005). The use of complementary and alternative medicine among California adults with and without cancer. Evidence-based Complementary and Alternative Medicine (eCAM), 2, 557–565.
- , , , , , , , , , , , & (2001). The effect of group psychosocial support on survival in metastatic breast cancer. New England Journal of Medicine, 345, 1719–26.
- , , , (2005). Internet use among primary care patients with type 2 diabetes: The generation and education gap. Journal of General Internal Medicine, 20, 470–473.
- , , , , , , & (1999). Impact of a patient-centered, computer-based health information/support system. American Journal of Preventive Medicine, 16, 1–9.
- , , & (2005). Medical connections: Use of the Internet and traditional sources of health information by rural Alabama households. Journal of Agromedicine, 10; 17–26.
- , , , & (2005). Information needs and visitors' experience of an Internet expert forum on infertility. Journal of Medical Internet Research, 7, e20.
- , , , & (2008). Systematic review of peer-support programs for people with cancer. Patient Education and Counseling, 70, 315–37.
- , & (2002). Users of Internet health information: Differences by health status. Journal of Medical Internet Research, 4, e7.
- Institute of Medicine. (2007). Cancer care for the whole patient: Meeting psychosocial health needs. Washington, D.C.: National Academies Press.
- , , , , , & (in press). Recovery following stroke: The role of self-management education. Social Science & Medicine, 64; 735–46.
- , , & (2006). Efficacy of Internet therapy for panic disorder. Journal of Behavior Therapy & Experimental Psychiatry, 37, 213–238.
- , , , & (2006). Online discussions mirroring family life during pregnancy. Informatics in Primary Care, 14, nform Prim Care; 14; 41–47.
- , , & (2005). The role of an online community for people with a rare disease: Content analysis of messages posted on a primary biliary cirrhosis mailing list. Journal of Medical Internet Research, 7, e10.
- , , , , & (1999). Cognitive-behavioral treatment in unselected rheumatoid arthritis outpatients. Clinical Journal of Pain, 15, 58–66.
- , , , , , & (2004). How can the Internet help parents of children with rare neurologic disorders? Journal of Child Neurology, 19, 902–907.
- , & (2006). Evaluation of a systematic design for a virtual patient community. Journal of Computer-Mediated Communication, 10, 00–00.
- (2001). Use of the Internet as a resource for consumer health information: Results of the second Osteopathic Survey of Health Care in America (OSTEOSURV-II). Journal of Medical Internet Research, 3, e31.
- , & (2008). A technological approach to reaching a hidden population of problem drinkers. Psychiatric Services, 59, 297–303.
- , , , , , , , , & (2003). Electronic support groups for breast carcinoma: A clinical trial of effectiveness. Cancer, 15, 920–5.
- , & (2006). Not all negative emotions are equal: The role of emotional expression in online support groups for women with breast cancer. Psycho-oncology, 15, 160–8.
- , , , , , , & (2008). Detecting emotional expression in face-to-face and online breast cancer support groups. Journal of Consulting and Clinical Psychology, 76, 517–23.
- , , , , , & (in press). Remote treatment of bulimia nervosa and binge eating disorder: A randomized trial of Internet-assisted cognitive behavioural therpy. Behaviour Research and Therapy.
- , & (2006). Caring for others: Internet video-conferencing group intervention for family caregivers of older adults with neurodegenerative disease. Gerontologist, 46, 398–403.
- , & (2008). Exploring the communication of social support within virtual communities: A content analysis of messages posted to an online HIV/AIDS support group. Cyberpsychology & Behavior, 11, 371–4.
- , , , , , , , & (2003). The impact of health information on the Internet on the physician-patient relationship. Archives of Internal Medicine, 163, 1727–1734.
- , , , , & (2007). Use of health-related and cancer-specific support groups among adult cancer survivors. Cancer, 109, 2580–90.
- , , , & (2004). Use of the internet for information and support: Disclosure among persons with breast and prostate cancer. Journal of Behavioral Medicine, 27, 491–505.
- , , , , , , & (2005). Randomized pilot of a self-guided Internet coping group for women with early-stage breast cancer. Annals of Behavioral Medicine , 30, 54–64.
- , & (2005). The Mediterranean eating in Scotland experience project: Evaluation of an internet-based intervention promoting the Mediterranean diet. British Journal of Nutrition, 94, 290–298.
- Pew Internet & American Life Project. (2000). The Online health care revolution: How the web helps Americans take better care of themselves. Retrieved December 28, 2008 from http://www.pewinternet.org/pdfs/PIP_Health_Report.pdf.
- Pew Internet & American Life Project (2008). Demographics of Internet Users. Retrieved April 7, 2009 from http://www.pewinternet.org/Static-Pages/Data-Tools/Download-Data/Trend-Data.aspx.
- , & (2006). Internet information-seeking in mental health. British Journal of Psychiatry, 189, 273–277.
- , , , , , , & (2005). How new subscribers use cancer-related online mailing lists. Journal of Medical Internet Research, 7, e32.
- , , , (2008). Health information, credibility, homophily, and influence via the Internet: Web sites versus discussion groups. Joural of Health Communication, 23, 358–68.
- , , , , , , , , & (2005). Efficacy of an internet-based behavioral weight loss program for overweight adolescent African-American girls. Eating and Weight Disorders, 10, 193–203.
- (2006). Support provision and emotional work in an Internet support group for cancer patients. Patient Education and Counseling, 62, 193–197.
- , , , , , , , , & (2003). Evaluation of an Internet support group for women with primary breast cancer. Cancer, 97, 1164–1173.
- , & (2001). What attracts patients with diabetes to an Internet support group? A 21-month longitudinal website study. Diabetic Medicine, 18, 154–8.

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