• American Psychiatric Association (1994) Diagnostic and Statistical Manual of Mental Disorders, 4th edn. American Psychiatric Association, Washington, DC, USA.
  • Baird, G., Simonoff, E., Pickles, A., Chandler, S., Loucas, T., Meldrum, D. & Charman, T. (2006) Prevalence of disorders of the autism spectrum in a population cohort of children in South Thames: the special needs and autism project (SNAP). Lancet, 368, 210215.
  • Boyatzis, R. (1998) Transforming Qualitative Information: Thematic Analysis and Code Development. Sage, London, UK.
  • Braun, V. & Clarke, V. (2006) Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77101.
  • Ecker, C., Marquand, A., Mourao-Miranda, J., Johnston, P., Daly, E., Brammer, M., Maltezos, S., Murphy, C., Robertson, D., Williams, S. & Murphy, D. (2010) Describing the brain in autism in five dimensions-Magnetic Resonance Imaging Assisted diagnosis of Autism Spectrum Disorder using multiparemeter classification approach. The Journal of Neuroscience, 30, 1061210623.
  • Kvale, S. (1996) Interviews: An Introduction to Qualitative Research Interviewing. SAGE, London, UK.
  • Lord, C., Risi, S., Lambrecht, L., Cook, E. H. Jr, Leventhal, B., DiLavore, P. C., Pickles, A. & Rutter, M. (2000) The autism diagnostic observation schedule – generic: a standard measure of social and communication deficits associated with the spectrum of autism. Journal of Autism and Developmental Disorders, 30, 205223.
  • Mason, J. (2002) Qualitative Researching, 2nd edn. Sage, London, UK.
  • National Autism Plan for Children (2003) Plan for the Identification, Assessment, Diagnosis and Access to Early Interventions for Pre-school and Primary Aged Children with Autism Spectrum Disorders (ASD). National Autistic Society for the National Initiative for Autism: Screening and Assessment, London, UK.
  • National Institute for Clinical Excellence (2011) Autism: Recognition, Referral and Diagnosis of Children and Young People on the Autistic Spectrum. Clinical Guidelines. NICE, London, UK.
  • O'Reilly, M. & Parker, N. (2012) ‘Unsatisfactory Saturation’: a critical exploration of the notion of saturated sample sizes in qualitative research. Qualitative Research, DOI: 10.1177/1468794112446106.
  • O'Reilly, M., Vostanis, P., Taylor, H., Day, C., Street, C. & Wolpert, M. (2012) Service user perspectives of multi-agency working: a qualitative study with parents and children with educational and mental health difficulties. Child and Adolescent Mental Health (in press).
  • Osborne, L. & Reed, P. (2008) Parents’ perceptions of communication with professionals during the diagnosis of autism. Autism, 12, 309324.
  • Pinto, D., Pagnamenta, A. T., Klei, L., Anney, R., Merico, D., Regan, R., Conroy, J., Magalhaes, T. R., Correia, C., Abrahams, B. S., Almeida, J., Bacchelli, E., Bader, G. D., Bailey, A. J., Baird, G., Battaglia, A., Berney, T., Bolshakova, N., Bölte, S., Bolton, P. F., Bourgeron, T., Brennan, S., Brian, J., Bryson, S. E., Carson, A. R., Casallo, G., Casey, J., Chung, B. H., Cochrane, L., Corsello, C., Crawford, E. L., Crossett, A., Cytrynbaum, C., Dawson, G., de Jonge, M., Delorme, R., Drmic, I., Duketis, E., Duque, F., Estes, A., Farrar, P., Fernandez, B. A., Folstein, S. E., Fombonne, E., Freitag, C. M., Gilbert, J., Gillberg, C., Glessner, J. T., Goldberg, J., Green, A., Green, J., Guter, S. J., Hakonarson, H., Heron, E. A., Hill, M., Holt, R., Howe, J. L., Hughes, G., Hus, V., Igliozzi, R., Kim, C., Klauck, S. M., Kolevzon, A., Korvatska, O., Kustanovich, V., Lajonchere, C. M., Lamb, J. A., Laskawiec, M., Leboyer, M., Le Couteur, A., Leventhal, B. L., Lionel, A. C., Liu, X. Q., Lord, C., Lotspeich, L., Lund, S. C., Maestrini, E., Mahoney, W., Mantoulan, C., Marshall, C. R., McConachie, H., McDougle, C. J., McGrath, J., McMahon, W. M., Merikangas, A., Migita, O., Minshew, N. J., Mirza, G. K., Munson, J., Nelson, S. F., Noakes, C., Noor, A., Nygren, G., Oliveira, G., Papanikolaou, K., Parr, J. R., Parrini, B., Paton, T., Pickles, A., Pilorge, M., Piven, J., Ponting, C. P., Posey, D. J., Poustka, A., Poustka, F., Prasad, A., Ragoussis, J., Renshaw, K., Rickaby, J., Roberts, W., Roeder, K., Roge, B., Rutter, M. L., Bierut, L. J., Rice, J. P., Salt, J., Sansom, K., Sato, D., Segurado, R., Sequeira, A. F., Senman, L., Shah, N., Sheffield, V. C., Soorya, L., Sousa, I., Stein, O., Sykes, N., Stoppioni, V., Strawbridge, C., Tancredi, R., Tansey, K., Thiruvahindrapduram, B., Thompson, A. P., Thomson, S., Tryfon, A., Tsiantis, J., Van Engeland, H., Vincent, J. B., Volkmar, F., Wallace, S., Wang, K., Wang, Z., Wassink, T. H., Webber, C., Weksberg, R., Wing, K., Wittemeyer, K., Wood, S., Wu, J., Yaspan, B. L., Zurawiecki, D., Zwaigenbaum, L., Buxbaum, J. D., Cantor, R. M., Cook, E. H., Coon, H., Cuccaro, M. L., Devlin, B., Ennis, S., Gallagher, L., Geschwind, D. H., Gill, M., Haines, J. L., Hallmayer, J., Miller, J., Monaco, A. P., Nurnberger, J. I., Jr,Paterson, A. D., Pericak-Vance, M. A., Schellenberg, G. D., Szatmari, P., Vicente, A. M., Vieland, V. J., Wijsman, E. M., Scherer, S. W., Sutcliffe, J. S. & Betancur, C. (2010) Functional impact of global rare copy number variation in autism spectrum disorders. Nature, 466, 368372.
  • Rapin, I. (1991) Autistic children: diagnosis and clinical features. Pediatrics, 87, 751760.
  • Ridge, K. & Guerin, S. (2011) Irish clinicians’ views of interventions for children with autistic spectrum disorders. Autism, 15, 239252.
  • Simonoff, E., Pickles, A., Charman, T., Chandler, S., Loucas, T. & Baird, G. (2008) Psychiatric disorders in children with Autism Spectrum Disorders: prevalence, comorbidity, and associated factors in a population-derived sample. Journal of the American Academy of Child and Adolescent Psychiatry, 47, 921929.
  • Sivberg, B. (2002) Family system and coping behaviours: a comparison between parents of children with Autistic Spectrum Disorders and parents with non-Autistic children. Autism, 6, 397409.
  • Sloper, P. (2004) Facilitators and barriers for co-ordinated multi-agency services. Child: Care, Health and Development, 30, 571580.
  • Spencer, L., Ritchie, J., Lewis, J. & Dillon, L. (2003) Quality in Qualitative Evaluation: a Framework for Assessing Research Evidence . Government Chief Social Researcher's Office, Prime Minister's Strategy Unit, London. Available at:
  • Wing, L. (1991) Diagnostic Interview for Social and Communication Disorders (DISCO). Available at: (accessed from 10 October 2011).
  • Wing, L. & Gould, J. (1979) Severe impairments of social interaction and associated abnormalities in children: epidemiology and classification. Journal of Autism and Developmental Disorders, 9, 1129.
  • World Health Organization (1992) The ICD-10 Classification of Mental and Behavioural Disorders: Diagnostic Criteria for Research. World Health Organization, Geneva, Switzerland.