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Extending psychosocial assessment of patients with psoriasis in the UK, using a self-rated, web-based survey

Authors


  • Conflict of interest: AA has received research and educational grants from the after pharmaceutical companies: Abbott, Schering Plough, Serono, Wyeth, Leo, Clinuvel and Janssen-Cilag. HMA has received educational grants from Wyeth and Leo Pharma, a grant from Schering Plough to carry out a members’ survey and funding from Abbott to attend a conference. FP has received a commercial fee from Abbott to support the drafting of this manuscript. NK has no conflicts of interest to declare.

Professor Alex Anstey, Gwent Healthcare NHS Trust, Royal Gwent Hospital, Cardiff Road, Newport, South Wales NP20 2UB, UK
E-mail: alex.anstey@wales.nhs.uk

Summary

Background.  Quality of life self-rating using a web-based survey has not previously been evaluated for psoriasis in the UK.

Aim.  To use an open-access web-based survey to assess the effect of psoriasis on patients’ daily life.

Methods.  The survey was conducted using a dedicated website endorsed by a UK psoriasis patient charity.

Results.  In total, 1760 patients (1102 women, 658 men; median age range 40–44 years) assessed their psoriasis using the website. Psoriasis was ‘very’ or ‘extremely’ active in 52%, and 71% had been diagnosed > 10 years previously. Psoriasis had negatively affected the working life of 59% of patients, and the educational performance of 31%.

Conclusions.  The use of an open-access web-based survey may address potential bias in previous studies, but may itself introduce a bias towards younger patients. This is the first report of a web-based survey of UK patients with psoriasis, providing further recent evidence of how psoriasis affects patients’ lives.

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