Are patient assistance programmes able to meet the needs of New York City women with breast cancer? Women's perspectives

Authors


  • Sources of support: funded in part by NCI RO1:CA107051. The funders did not have a role in the design and conduct of the study; collection, management, analysis and interpretation of the data preparation, review or approval of the manuscript.

Nina Bickell, Department of Health Policy, Mount Sinai School of Medicine, 1 Gustave L. Levy Place, Box 1077, New York, NY 10029, USA (e-mail: nina.bickell@mssm.edu; alicia.cohen@mssm.edu).

Abstract

Women with breast cancer report needs that may interfere with their ability to obtain necessary treatments. High-quality community-based patient assistance programmes exist; however, their ability to identify and meet women's needs is unknown. We surveyed women with breast cancer attending such programmes to assess programmes' ability to identify and meet their needs. We surveyed 117 (42% minority) women utilizing nine programmes in the New York City area about expectations, needs and experiences. Ninety-two (89%) women wanted information, 102 (95%) psychosocial support and 15 (20%) practical assistance. Seventy-three per cent had all or most of their needs identified, and 74% had all or most of their needs met. Seventy per cent stated programmes met needs they were not previously aware they had. Needs identified and met were lower among minority women (57% vs. 84%; P = 0.003), those with lower income (46% vs. 79%; P = 0.02) and those in poor physical health (56% vs. 78%; P = 0.04), independent of the type of need. High-quality community-based patient assistance programmes effectively identify and meet the needs of women with breast cancer but traditionally at-risk women appear less likely to have needs identified and met. Programmes should enhance the systemization and sensitivity of needs assessments to improve women's experience with cancer.

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