Other members of the Inter Disciplinary Working Group are listed in the Appendix.
European principles of haemophilia care
Article first published online: 30 JAN 2008
© 2008 The Authors
Volume 14, Issue 2, pages 361–374, March 2008
How to Cite
COLVIN, B. T., ASTERMARK, J., FISCHER, K., GRINGERI, A., LASSILA, R., SCHRAMM, W., THOMAS, A., INGERSLEV, J. and FOR THE INTER DISCIPLINARY WORKING GROUP (2008), European principles of haemophilia care. Haemophilia, 14: 361–374. doi: 10.1111/j.1365-2516.2007.01625.x
- Issue published online: 30 JAN 2008
- Article first published online: 30 JAN 2008
- Accepted after revision 21 November 2007
- haemophilia care;
Summary. As the management of haemophilia is complex, it is essential that those with the disorder should have ready access to a range of services provided by a multidisciplinary team of specialists. This document sets out the principles of comprehensive haemophilia care in Europe. Within each country there should be a national organization which oversees the provision of specialist Comprehensive Care Centres that provide the entire spectrum of clinical and laboratory services. Depending upon the size and geographical distribution of the population, a network of smaller haemophilia centres may also be necessary. There should be arrangements for the supply of safe clotting factor concentrates which can also be used in home treatment and prophylaxis programmes. A national register of patients is recommended along with collection of treatment statistics. As comprehensive haemophilia care is multidisciplinary by nature, the need for education and research programmes for all staff members is emphasized: Members of the Interdisciplinary Working Group not represented in the list of authors are mentioned in Section 4 of this document.