Palliative sedation at home in the Netherlands: a nationwide survey among nurses
Article first published online: 7 MAR 2011
© 2011 The Authors. Journal of Advanced Nursing © 2011 Blackwell Publishing Ltd
Journal of Advanced Nursing
Volume 67, Issue 8, pages 1719–1728, August 2011
How to Cite
Brinkkemper, T., Klinkenberg, M., Deliens, L., Eliel, M., Rietjens, J. A.C., Zuurmond, W. W.A. and Perez, R. S.G.M. (2011), Palliative sedation at home in the Netherlands: a nationwide survey among nurses. Journal of Advanced Nursing, 67: 1719–1728. doi: 10.1111/j.1365-2648.2011.05614.x
- Issue published online: 15 JUL 2011
- Article first published online: 7 MAR 2011
- Accepted for publication 8 January 2011
- end of life;
- palliative sedation;
- web-based questionnaire
brinkkemper t., klinkenberg m., deliens l., eliel m., rietjens j.a.c., zuurmond w.w.a. & perez r.s.g.m. (2011) Palliative sedation at home in the Netherlands: a nationwide survey among nurses. Journal of Advanced Nursing 67(8), 1719–1728.
Aim. This paper is a report of a nationwide study conducted to assess experiences of nurses involved in palliative sedation at home after introduction of a physicians’ guideline for palliative sedation.
Background. Most studies investigating the practice of palliative sedation focus on physicians’ practices and attitudes. However, little is known about experiences and attitudes of nurses.
Methods. A web-based structured questionnaire was offered to 387 nurses providing medical technical care in 2007, assessing their experiences concerning decision-making, treatment policy and communication, focussing on the last patient receiving palliative sedation.
Results. The questionnaire was filled out by 201 nurses (response rate 52%). The majority of respondents agreed with the indication for palliative sedation. However, 21% reported to have refused carrying out a palliative sedation in the preceding year. The general practitioner was not present at the start of palliative sedation in a third of the cases, but was available when needed. The sedation was considered insufficiently effective by 42% of the respondents. According to a third of the respondents, the level of sedation was not related to the required level of symptom relief nor were changes in dosage based on the severity of symptoms.
Conclusion. Although the guideline for palliative sedation appears to be followed adequately in the majority of cases with respect to indication for palliative sedation and reportage. The survey findings revealed shortcomings in medication policy, communication, medical control over the start and continued monitoring of palliative sedation.