Experiences of young adults growing up with innate or early acquired HIV infection – a qualitative study
Article first published online: 22 AUG 2012
© 2012 Blackwell Publishing Ltd
Journal of Advanced Nursing
Volume 69, Issue 6, pages 1357–1365, June 2013
How to Cite
2013) Experiences of young adults growing up with innate or early acquired HIV infection – a qualitative study. Journal of Advanced Nursing 69(6), 1357–1365. doi: 10.1111/j.1365-2648.2012.06127.x, , , & (
- Issue published online: 10 APR 2013
- Article first published online: 22 AUG 2012
- Manuscript Accepted: 27 JUN 2012
- National Research in Health Care Science School
- Karolinska Institutet
- human immunodeficiency virus;
- loss in life;
- quality of life;
- young adult
To explore the experience of young adults growing up and living with HIV in urban Sweden.
HIV has become a widespread pandemic. Effective antiretroviral treatment has dramatically increased the survival rate of infected individuals, such that HIV infection is currently considered a chronic disease where treatment is available. Data concerning the experience of living with HIV since early childhood is scarce and more empirical knowledge is needed to direct the development of adequate care and interventions for this growing demographic.
Exploratory qualitative study.
Semi-structured interviews were conducted with ten HIV-infected young adults over the period from January–August 2008. Transcripts of the interviews were analysed using qualitative content analysis.
The analysis revealed five categories illustrating the experiences of growing up and living with HIV in Sweden: (1) to protect oneself from the risk of being stigmatized; (2) to be in control; (3) losses in life, but HIV is not a big deal; (4) health care/healthcare providers; and (5) belief in the future.
It is essential to offer a safe, trustworthy, and professional healthcare environment during the upbringing of HIV-infected children. Evidence-based interventions are needed to improve care and support, particularly about the handling of stigma and discrimination.