Coeliac disease – women's experiences in everyday life
Article first published online: 8 OCT 2012
© 2012 Blackwell Publishing Ltd
Journal of Clinical Nursing
Volume 21, Issue 23-24, pages 3442–3450, December 2012
How to Cite
Jacobsson, L. R., Hallert, C., Milberg, A. and Friedrichsen, M. (2012), Coeliac disease – women's experiences in everyday life. Journal of Clinical Nursing, 21: 3442–3450. doi: 10.1111/j.1365-2702.2012.04279.x
- Issue published online: 12 NOV 2012
- Article first published online: 8 OCT 2012
- Manuscript Accepted: 2 JUN 2012
- chronic disease;
- illness experience;
- phenomenology research
Aims and objectives
To describe what life is like as a woman living with coeliac disease.
The therapy for coeliac disease is a gluten-free diet, and if sufferers keep strictly to this, it is suggested that they will stay well. However, previous studies point out that people who are treated for coeliac disease, particularly women, experience various kinds of inconvenience in relation to having coeliac disease and to being treated with gluten-free diet.
A qualitative research design was chosen.
A phenomenological approach as devised by Giorgi was used. Tape-recorded qualitative interviews with a total of 15 women who were being treated for coeliac disease were conducted in 2008 in Sweden.
The results demonstrated that coeliac disease can influence women's lives in different ways. The general structure of being a woman with coeliac disease was described as a striving towards a normalised lifeworld. Three conditions necessary to achieve a normalised life were described, namely being secure, being in control and being seen and included.
Understanding factors affecting the ability to live with coeliac disease as normally as possible can help caregivers, and others, to support these women in their aims.
Relevance to clinical practice
Nurses should help women to adopt facilitating thoughts in relation to the disease and, in so doing, help them to select appropriate coping strategies.