Life with chronic obstructive pulmonary disease: striving for ‘controlled co-existence’
Article first published online: 2 JAN 2013
© 2013 Blackwell Publishing Ltd
Journal of Clinical Nursing
Volume 22, Issue 7-8, pages 986–995, April 2013
How to Cite
Cooney, A., Mee, L., Casey, D., Murphy, K., Kirwan, C., Burke, E., Conway, Y., Healy, D., Mooney, B., Murphy, J. and The PRINCE Team (2013), Life with chronic obstructive pulmonary disease: striving for ‘controlled co-existence’. Journal of Clinical Nursing, 22: 986–995. doi: 10.1111/j.1365-2702.2012.04285.x
- Issue published online: 11 MAR 2013
- Article first published online: 2 JAN 2013
- Manuscript Accepted: 12 MAY 2012
- Health Research Board, Ireland. Grant Number: NMRPS/07/01
- Pfizer Unconditional Educational
- chronic illness;
- chronic obstructive pulmonary disease;
- grounded theory
Aims and objectives
To understand the meaning of chronic obstructive pulmonary disease (COPD) for people and their response to this disease.
COPD is a major cause of disability and death. The symptoms of COPD have the potential to impact on every aspect of a person's day-to-day life. To date most published qualitative studies have focused on the ‘experience’ of breathlessness and its impact on the person. Few studies have sought to ‘understand’ the meaning of COPD to people and their response to this disease. This study aimed to address this gap.
Straussian grounded theory guided study design. Grounded theory was considered appropriate for this study because of its focus on how people respond to and act on the problems they encounter.
Data were collected through semi-structured interviews with 26 people with COPD. Study participants were recruited from general practices on the western seaboard of Ireland.
Two interrelated categories were identified as contributing to ‘co-existing with COPD’: ‘hiding’ and ‘battling’. ‘Co-existing with COPD’ was conceptualised as the core category. The potential to ‘co-exist’ with COPD was influenced by mediating factors.
The Theory of Co-existing with COPD was generated from the data. This theory explains the delicate balance people with COPD maintain to ‘co-exist with COPD’. ‘Controlled co-existence’ enables the person to feel in control and live life to the optimum. This is a fragile balance however and the unpredictability of COPD can tip the person into ‘strained co-existence’ or ‘uncontrolled co-existence’.
Relevance to clinical practice
Understanding the experience of living with COPD and the balances involved in ‘co-existing with COPD’ can help health professionals provide more focused and empowered client care. Enabling people to achieve ‘controlled co-existence’ with COPD challenges health professionals to educate people with COPD on how to effectively manage their disease.