Attitudes of genetic clinicians in Wales to the future development of cancer genetics services

  1. Rachel Iredale BSocSc MA PhD1,*,
  2. Glyn Elwyn BA MB BCh MSc FRCGP PhD2,
  3. Adrian Edwards BMedSci MB BS MRCP MRCGP MPhil PhD3,
  4. Jonathon Gray BMSc MBChB MRCP PhD FRCP4

Article first published online: 22 MAY 2006

DOI: 10.1111/j.1365-2753.2006.00657.x

Issue

Journal of Evaluation in Clinical Practice

Journal of Evaluation in Clinical Practice

Volume 13, Issue 1, pages 86–89, February 2007

Additional Information

How to Cite

Iredale, R., Elwyn, G., Edwards, A. and Gray, J. (2007), Attitudes of genetic clinicians in Wales to the future development of cancer genetics services. Journal of Evaluation in Clinical Practice, 13: 86–89. doi: 10.1111/j.1365-2753.2006.00657.x

Author Information

  1. 1

    Senior Research Fellow, Institute of Medical Genetics, School of Medicine, Cardiff University, Heath Park, Cardiff, UK

  2. 2

    Professor of Primary Care Research, Centre for Health Sciences Research, Cardiff University, 56 Park Place, Cardiff, UK

  3. 3

    Professor in General Practice, Centre for Health Sciences Research, Cardiff University, 56 Park Place, Cardiff, UK

  4. 4

    Consultant in Medical Genetics, Institute of Medical Genetics, School of Medicine, Cardiff University, Heath Park, Cardiff, UK

*Dr Rachel Iredale Institute of Medical Genetics School of Medicine Cardiff University Heath Park Cardiff CF14 4XN UK E-mail: Rachel.Iredale@cardiffandvale.wales.nhs.uk

Publication History

  1. Issue published online: 24 OCT 2006
  2. Article first published online: 22 MAY 2006
  3. Accepted for publication: 12 July 2005

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Keywords:

  • cancer genetics;
  • focus groups;
  • health services;
  • Wales

Abstract

Rationale  Cancer genetics is one of the fastest-growing areas of clinical genetics and it is imperative to identify how services should be organized and delivered in the future.

Methods  A qualitative study utilizing focus group methodology which explored the attitudes of clinicians working in the Medical Genetics Service for Wales to a number of possible models for future service delivery.

Results  There was no consensus for any particular model. Greater involvement of primary care practitioners is anticipated, but this requires investment in information, education and professional development initiatives. Self-referrals were not encouraged, though the promotion of genetic literacy amongst the general population was supported, particularly in conjunction with pharmacists.

Conclusion  As demand for cancer genetics services continues to increase, some consensus about the future delivery of such services is necessary. Consultation with other stakeholder groups, especially primary care practitioners and patients, should also contribute to service planning.

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