Prevalence of intellectual disability: a comprehensive study based on national registers
Article first published online: 8 AUG 2007
Journal of Intellectual Disability Research
Volume 51, Issue 9, pages 715–725, September 2007
How to Cite
Westerinen, H., Kaski, M., Virta, L., Almqvist, F. and Iivanainen, M. (2007), Prevalence of intellectual disability: a comprehensive study based on national registers. Journal of Intellectual Disability Research, 51: 715–725. doi: 10.1111/j.1365-2788.2007.00970.x
- Issue published online: 8 AUG 2007
- Article first published online: 8 AUG 2007
- Accepted 20 March 2007
- intellectual disability;
Background Based on standard social benefit registers, the prevalence of intellectual disability (ID) in Finland is estimated to be 0.6%, while epidemiological surveys yield 1.1%. Combining several registers, our aim was to find a more reliable estimate of the prevalence of ID, especially among children and adolescents. This is important when special or inclusive general services are planned to meet the various needs of people with ID.
Method A survey based on eight national health and social benefit registers.
Results Combining different registers yielded a mean ID prevalence of 0.70% (95% CI 0.69–0.70%), with marked differences according to sex and age group (range 0.38–0.96%). Capture–recapture analysis gave higher prevalence estimates (range 0.57–1.08%).
Conclusions When several health and social benefit registers are surveyed, the estimated prevalence of ID increases, approaching that obtained in epidemiological surveys.