Associations and costs of parental symptoms of psychiatric distress in a multi-diagnosis group of children with special needs
Article first published online: 4 JAN 2011
© 2011 The Authors. Journal of Intellectual Disability Research © 2011 Blackwell Publishing Ltd
Journal of Intellectual Disability Research
Volume 55, Issue 3, pages 263–280, March 2011
How to Cite
Thurston, S., Paul, L., Loney, P., Ye, C., Wong, M. and Browne, G. (2011), Associations and costs of parental symptoms of psychiatric distress in a multi-diagnosis group of children with special needs. Journal of Intellectual Disability Research, 55: 263–280. doi: 10.1111/j.1365-2788.2010.01356.x
- Issue published online: 15 FEB 2011
- Article first published online: 4 JAN 2011
- Accepted 5 November 2010
- complex needs;
- parental distress
Background Families supporting children with complex needs are significantly more distressed and economically disadvantaged than families of children without disability and delay. What is not known is the associations and costs of parental psychiatric distress within a multi-diagnosis group of special needs children.
Methods In this cross-sectional survey, families were identified from the Children's Treatment Network. Families were eligible if the child was aged 0–19 years, resided in Simcoe/York, and if there were multiple family needs (n = 429).
Results Some 42% of surveyed parents exhibited symptoms (mild to severe) of psychiatric distress. The presence of these symptoms was associated with reports of poorer social support, family dysfunction, greater adverse impact of the child's situation on the family, poorer child behaviour, unfavourable parenting styles and poorer child psychosocial functioning. The severity of the child's physical dysfunction was not related to parents/guardians most knowledgeable symptoms of psychiatric distress. Total parent costs were higher and children's uses of primary care services were higher in parents with symptoms of psychiatric distress.
Conclusion Parent symptoms of psychiatric distress are a significant societal concern in families with complex needs children. Children's rehabilitation efforts need to incorporate parental mental health assessment and treatment into existing programmes. This could lead to decreases in direct and indirect healthcare utilisation costs.