The quantitative measurement of family quality of life: a review of available instruments
Article first published online: 30 AUG 2011
© 2011 The Authors. Journal of Intellectual Disability Research © 2011 Blackwell Publishing Ltd
Journal of Intellectual Disability Research
Special Issue: Part One: Family Quality of Life (Edited by Ralph Kober and Mian Wang)
Volume 55, Issue 12, pages 1098–1114, December 2011
How to Cite
Hu, X., Summers, J. A., Turnbull, A. and Zuna, N. (2011), The quantitative measurement of family quality of life: a review of available instruments. Journal of Intellectual Disability Research, 55: 1098–1114. doi: 10.1111/j.1365-2788.2011.01463.x
- Issue published online: 21 NOV 2011
- Article first published online: 30 AUG 2011
- Accepted 8 July 2011
- family quality of life;
- intellectual disability;
- quality of life
Background Family quality of life (FQOL) has emerged as an important outcome of service delivery for individuals with disabilities and their families. The purpose of this review was to explore the disparity of scale development approaches between families with children with disabilities and families from other populations and identify strengths to serve as a source of recommendations to improve the measurements of FQOL in the disability field.
Method We conducted a keyword search of 25 databases. Sixteen measurement tools on FQOL, family well-being and family satisfaction currently used in the disability field, healthcare field and general family studies published in journals from 1980 to 2009 were included in the analysis.
Results Three themes emerged from the detailed analysis and comparisons of the instruments: (1) description of the primary purpose and theoretical basis; (2) identification of the tool's respondents, domains, response formats and scoring strategies to assess family systems; and (3) summarisation of available psychometric information.
Conclusions As family researchers continue their mission to conceptualise and theorise about FQOL, they should also promote the refinement of FQOL measurements and consider the implications from family instruments used in the healthcare and general family fields from the following aspects: (1) domains of FQOL; (2) units of analysis; (3) response format; (4) scoring choice; and (5) psychometric evaluation.