Source of funding: This research was supported by the National Institute of Health Grant 5R01HD043100-05 and NHMRC #303189.
Part 2: Invited Review, Original Articles & Book Review
Family functioning in families with a child with Down syndrome: a mixed methods approach
Article first published online: 25 APR 2012
© 2012 The Authors. Journal of Intellectual Disability Research © 2012 Blackwell Publishing Ltd
Journal of Intellectual Disability Research
Volume 56, Issue 10, pages 961–973, October 2012
How to Cite
Povee, K., Roberts, L., Bourke, J. and Leonard, H. (2012), Family functioning in families with a child with Down syndrome: a mixed methods approach. Journal of Intellectual Disability Research, 56: 961–973. doi: 10.1111/j.1365-2788.2012.01561.x
- Issue published online: 13 SEP 2012
- Article first published online: 25 APR 2012
- Accepted 1 March 2012
- Down syndrome;
- family functioning;
- maladaptive behaviour;
- marital adjustment
Background This study aimed to explore the factors that predict functioning in families with a child with Down syndrome using a mixed methods design. The quantitative component examined the effect of maladaptive and autism-spectrum behaviours on the functioning of the family while the qualitative component explored the impact of having a child with Down syndrome on family holidays, family activities and general family functioning.
Methods Participants in this study were 224 primary caregivers of children with Down syndrome aged 4–25 years (57.1% male; 42.9% female) currently residing in Western Australia (74.0% in metropolitan Perth and 26.0% in rural Western Australia).
Results Maladaptive and autism-spectrum behaviour were associated with poorer family functioning. Mean total scores on the measures of family functioning and marital adjustment were comparable to that of families of typically developing children. Consistent with the quantitative findings, normality was the most common theme to emerge in the qualitative data. Child problem behaviours were also identified by parents/carers as having a negative impact on the family.
Conclusions This study has implications for the development of programs to support families with a child with Down syndrome and may dispel some of the myths surrounding the impact of intellectual disability on the family.