Parent participation in decision-making in health-care services for children: an integrative review
Article first published online: 12 OCT 2012
© 2012 John Wiley & Sons Ltd
Journal of Nursing Management
Special Issue: This issue: Leadership and management challenges in addressing the dignity and respect agenda Issue editor: Mike Cook
Volume 22, Issue 2, pages 177–191, March 2014
How to Cite
2012) Journal of Nursing Management 22, 177–191 Parent participation in decision-making in health-care services for children: an integrative review, (
- Issue published online: 27 FEB 2014
- Article first published online: 12 OCT 2012
- Manuscript Accepted: 11 JUN 2012
- health-care services;
- parent participation;
- parent–health professional relationship;
To describe and synthesize previous research on parents' perceptions of their participation in decision making in child health-care services.
Health policy in the area of user involvement emphasizes parent participation in decision-making (DM), thus ensuring that services are provided in accordance with their child's needs and enhancing parents' control over their child's health-care services.
A systematic literature search, covering the period January 2000 to February 2011, found 18 studies that met the inclusion criteria. The analysis process involved data extraction, reduction, comparison and synthesizing.
Three themes emerged: (1) relational factors and interdependence, (2) personal factors and attitudes and (3) organisational factors.
Parents highlighted the importance of the parent–health professional relationship, professionals' competence and the possibility of varying the degree of participation in decision making. Challenges involved asymmetry in authority and power, professionals' attitudes and competence and organisational shortcomings in health-care services. Health professionals need to become more aware of their critical role and responsibility in involving parents in DM.
Implications for nursing management
Health professionals' attitudes and competence can be improved by knowledge of user involvement and research and facilitating the inclusion of parents in decision making by influencing the culture, routines and resources in the health service.