Considering patient non-participation in health care
Article first published online: 18 AUG 2008
© 2008 The Authors. Journal compilation © 2008 Blackwell Publishing Ltd
Volume 11, Issue 3, pages 263–271, September 2008
How to Cite
Eldh, A. C., Ekman, I. and Ehnfors, M. (2008), Considering patient non-participation in health care. Health Expectations, 11: 263–271. doi: 10.1111/j.1369-7625.2008.00488.x
- Issue published online: 18 AUG 2008
- Article first published online: 18 AUG 2008
- Accepted for publication 15 November 2007
- concept analysis;
- patient participation
Objective The aim of this study was to depict patient non-participation as described by a diverse group with recent experiences of being patients.
Background Patient participation is regarded as a primary condition for optimal quality of care, suggesting that non-participation should be avoided. A common understanding of the concept of patient non-participation is needed. A discrepancy in definitions of patient non-participation has been found in health-care interactions, health-care classifications and health-care research, and little is known of what patient non-participation represents to patients.
Study design A survey consisting of closed-ended and open-ended questions was administered to persons that had recently been patients to gather respondents’ descriptions of what they considered as patient non-participation. Qualitative content analysis was used to analyse free-text descriptions, and descriptive statistics were used for the close-ended alternatives.
Findings Lacking information (e.g. not being provided with appropriate information) and lacking recognition (e.g. not being listened to and/or lacking recognition as an individual with individual needs and concerns) were significant aspects of patient non-participation. Furthermore, non-participation encompassed facing organization-centred, as opposed to patient-centred, health care as well as feeling insecure in health care interactions.
Conclusion The findings provide input for a better understanding of what patients experience as non-participation. Organising for the caregivers to be able to thoroughly listen to the patients’ illness narratives would easily reduce the risk of patient’s experiencing what is described as non-participation and would provide a sound base for patient learning needs.