• 1
    Meleis AI. Theoretical Nursing: Development and Progress, 3rd edn. Philadelphia: Lippincott, 2005.
  • 2
    Ogden CK, Richards IA. The Meaning of Meaning: A Study of the Influence of Language upon Thought and of the Science of Symbolism. Orlando, FL: Harcourt Brace Jovanovich, 1989.
  • 3
    Walker LO, Avant KC. Strategies for Theory Construction in Nursing, 3rd edn. Norwalk, CT: Appleton & Lange, 1995.
  • 4
    Rothman DJ. The origins and consequences of patient autonomy: a 25-year perspective. Health Care Analysis, 2001; 9: 255264.
  • 5
    Tauber AI. Sick autonomy. Perspectives in Biology and Medicine, 2003; 46: 484495.
  • 6
    World Health Organization. A Declaration on the Promotion of Patients’ Rights in Europe. Copenhagen: WHO, 1994. Available at:, accessed on 10 August 2006.
  • 7
    Wallerstein N. What is the Evidence on Effectiveness of Empowerment to Improve Health? Health Evidence Network Report. Copenhagen: WHO Regional Office for Europe, 2006. Available at:, accessed on 1 September 2006.
  • 8
    Partridge E. Origins. An Etymological Dictionary of Modern English, 5th edn. London: Routledge, 1990.
  • 9
    Simpson JA, Weiner ESC (eds). The Oxford English Dictionary, 2nd edn. Oxford, UK: Clarendon, 1989.
  • 10
    Coulter A, Magee H (eds). The European Patient of the Future. Maidenhead, UK: Open University Press, 2003.
  • 11
    National Library of Medicine. Medical Subject Headings. Available at:, accessed on 20 January 2007.
  • 12
    Fergusson R, Manser M, Pickering D (eds). The New Penguin English Thesaurus. London: Penguin Group, 2000.
  • 13
    Robinson M, Davidson G (eds). Chambers 21st Century Dictionary, Rev edn. Cambridge, UK: Cambridge University Press, 1999.
  • 14
    National Library of Medicine. MedLine (PubMed). Available at:, accessed on 5 March 2007.
  • 15
    Eldh AC, Ehnfors M, Ekman I. The phenomena of participation and non-participation in healthcare: experiences of patients attending a nurse-led clinic for chronic heart failure. European Journal of Cardiovascular Nursing, 2004; 3: 239246.
  • 16
    Eldh AC, Ehnfors M, Ekman I. The meaning of patient participation for patients and nurses at a nurse-led outpatient clinic for chronic heart failure. European Journal of Cardiovascular Nursing, 2006; 5: 4553.
  • 17
    Christensen M, Hewitt-Taylor J. Empowerment in nursing: paternalism or maternalism? British Journal of Nursing, 2006; 15: 695700.
  • 18
    Bremberg S, Nilstun T, Kovac V, Zwitter M. GPs facing reluctant and demanding patients: analysing ethical justifications. Family Practice, 2003; 20: 254261.
  • 19
    Eldh AC, Ekman I, Ehnfors M. The concept of patient participation: Patient's descriptions in comparison to health care definitions, in press.
  • 20
    Eldh AC, Ekman I, Ehnfors M. Conditions for patient participation and non-participation in health care. Nursing Ethics, 2006; 13: 503514.
  • 21
    Sandelowski M. Rigor or rigor mortis: the problem of rigor in qualitative research revisited. ANS Advances in Nursing Science, 1993; 16: 18.
  • 22
    Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 2004; 24: 105112.
  • 23
    Downe-Wamboldt B. Content analysis: method, applications and issues. Health Care for Women International, 1992; 13: 313321.
  • 24
    Ricoeur P. Interpretation Theory: Discourse and the Surplus of Meaning. Forth Worth: Texas Christian University Press, 1976.
  • 25
    Sandelowski M. Real qualitative researchers do not count: the use of numbers in qualitative research. Research in Nursing & Health, 2001; 24: 230240.
  • 26
    International Council of Nurses. The ICN Code of Ethics for Nurses. Geneva: ICN, 2005. Available at:, accessed on 12 March 2007.
  • 27
    Barry CA, Stevenson FA, Britten N, Barber N, Bradley CP. Giving voice to the lifeworld. More humane, more effective care? A qualitative study of doctor-patient communication in general practice. Social Science & Medicine, 2001; 53: 487505.
  • 28
    Fossum B, Arborelius E. Patient-centred communication: videotaped consultations. Patient Education and Counseling, 2004; 54: 163169.
  • 29
    Street RL, Howard SG, Ward MM, Krupat E, Kravitz RL. Patient participation in medical consultations: why some patients are more involved than others. Medical Care, 2005; 43: 960969.
  • 30
    Ekman I, Swedberg K. Home-based management of patient with chronic heart failure: focus on content not just form!. European Heart Journal, 2002; 23: 13231325.
  • 31
    Dieppe P, Rafferty A-M, Kitson A. The clinical encounter: the focal point of patient-centred care. Health Expectations, 2002; 5: 279281.
  • 32
    Gillespie R, Florin D, Gillam S. How is patient-centred care understood by the clinical, managerial and lay stakeholders responsible for promoting this agenda? Health Expectations, 2004; 7: 142149.
  • 33
    Ekman I, Boman K, Olofsson M, Aires N, Swedberg K. Gender makes a difference in the description of dyspnoea in patients with chronic heart failure. European Journal of Cardiovascular Nursing, 2005; 4: 117121.
  • 34
    Ekman I, Cleland JG, Andersson B, Swedberg K. Exploring symptoms in chronic heart failure. European Journal of Heart Failure, 2005; 7: 699703.
  • 35
    Mosca L, Appel LJ, Benjamin EJ et al. Evidence-based guidelines for cardiovascular disease prevention in women: American Heart Association scientific statement. Arteriosclerosis, Thrombosis, and Vascular Biology, 2004; 24: 2950.
  • 36
    Nerheim H. Vitenskap og Kommunikasjon. Oslo: Universitetsforlaget, 1996. [In Norwegian]
  • 37
    Anderson RM, Funnell MM. Patient empowerment: reflections on the challenge of fostering the adoption of a new paradigm. Patient Education and Counseling, 2005; 57: 153157.
  • 38
    Parascandola M, Hawkins J, Danis M. Patient autonomy and the challenge of clinical uncertainty. Kennedy Institute of Ethics Journal, 2002; 12: 245264.
  • 39
    Koehn D. Rethinking Feminist Ethics: Care, Trust and Empathy. London: Routledge, 1998.
  • 40
    General Assembly of the United Nations. (1948) Universal Declaration of Human Rights. Available at:, accessed on 15 March 2007.
  • 41
    Gillham B. Developing a Questionnaire. London: Continuum, 2000.