Consumer involvement in systematic reviews of comparative effectiveness research
Article first published online: 6 MAR 2012
© 2012 John Wiley & Sons Ltd
Volume 16, Issue 4, pages 323–337, December 2013
How to Cite
Kreis, J., Puhan, M. A., Schünemann, H. J. and Dickersin, K. (2013), Consumer involvement in systematic reviews of comparative effectiveness research. Health Expectations, 16: 323–337. doi: 10.1111/j.1369-7625.2011.00722.x
- Issue published online: 18 NOV 2013
- Article first published online: 6 MAR 2012
- Accepted for publication 14 July 2011
- Institute of Medicine, Washington, D.C.,United States
- Commonwealth Fund,New York, NY, United States
- consumer involvement;
- consumer participation;
- systematic reviews
Background The Institute of Medicine recently recommended that comparative effectiveness research (CER) should involve input from consumers. While systematic reviews are a major component of CER, little is known about consumer involvement.
Objective To explore current approaches to involving consumers in US-based and key international organizations and groups conducting or commissioning systematic reviews (‘organizations’).
Design In-depth, semi-structured interviews with key informants and review of organizations’ websites.
Setting and participants Seventeen highly regarded US-based and international (Cochrane Collaboration, Campbell Collaboration) organizations.
Results Organizations that usually involve consumers (seven of 17 in our sample) involve them at a programmatic level in the organization or in individual reviews through one-time consultation or on-going collaboration. For example, consumers may suggest topics, provide input on the key questions of the review, provide comments on draft protocols and reports, serve as co-authors or on an advisory group. Organizations involve different types of consumers (individual patients, consumer advocates, families and caregivers), recruiting them mainly through patient organizations and consumer networks. Some offer training in research methods, and one developed training for researchers on how to involve consumers. Little formal evaluation of the effects of consumer involvement is being carried out.
Conclusions Consumers are currently involved in systematic reviews in a variety of ways and for various reasons. Assessing which approaches are most effective in achieving different aims of consumer involvement is now required to inform future recommendations on consumer involvement in CER.