SEARCH

SEARCH BY CITATION

References

  • 1
    Cooper GS, Stroehla BC. The epidemiology of autoimmune diseases. Autoimmunity Reviews, 2003; 2: 119125.
  • 2
    Polman CH, Reingold SC, Edan G et al. Diagnostic criteria for multiple sclerosis: 2005 revisions to the McDonald’s criteria. Annals of Neurology, 2005; 58: 840846.
  • 3
    Comi G, Filippi M, Barkhof F, the Early Treatment of Multiple Sclerosis Study Group. Effects of early interferon-beta treatment on conversion to definite multiple sclerosis: a randomized study. Lancet, 2001; 357: 15761582.
  • 4
    Heesen C, Kolbeck J, Gold SM, Schulz H, Schulz KH. Delivering the diagnosis of multiple sclerosis. Results of a survey among patients and neurologists. Acta Neurologica Scandinavica, 2003; 107: 363368.
  • 5
    Johnson J. On receiving the diagnosis of multiple sclerosis: managing the transition. Multiple Sclerosis, 2003; 9: 8288.
  • 6
    Janssens ACJW, de Boer JB, Kalkers NF, Passchier J, van Doorna PA, Hintzen RQ. Patients with multiple sclerosis prefer early diagnosis. European Journal of Neurology, 2004; 11: 335337.
  • 7
    Solari A, Acquarone N, Pucci E et al. Communicating the diagnosis of multiple sclerosis – a qualitative study. Multiple Sclerosis, 2007; 13: 763769.
  • 8
    Terry K. Telling patients more will save you time. Medical Economics, 1994; 71: 4052.
  • 9
    Nease RF, Brooks WB. Patient desire for information and decision making in health care decisions: the Autonomy Preference Index and the Health Opinion Survey. Journal of General Internal Medicine, 1995; 10: 593600.
  • 10
    Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (Or, it takes at least two to tango)Social Science & Medicine, 1997; 44: 681692.
  • 11
    Woolf SH, Chan EC, Harris R et al. Promoting informed choice: transforming health care to dispense knowledge for decision making. Annals of Internal Medicine, 2005; 143: 293300.
  • 12
    Stewart M. Effective physician-patient communication and health outcomes: a review. Canadian Medical Association Journal, 1995; 152: 14231433.
  • 13
    Edwards A, Elwyn G. Evidence Based Patient Choice. Oxford: Oxford University Press, 2001.
  • 14
    Heesen C, Solari A, Giordano A, Kasper J, Köpke S. Decisions on multiple sclerosis immunotherapy: new treatment complexities urge patient engagement. Journal of the Neurological Sciences, 2011; 306: 192197.
  • 15
    Campbell M, Fitzpatrick R, Haines A et al. Framework for design and evaluation of complex interventions to improve health. BMJ, 2000; 321: 694696.
  • 16
    Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M. Developing and evaluating complex interventions: the new Medical Research Council guidance. BMJ, 2008; 337: 979983.
  • 17
    Solari A, Martinelli V, Trojano M, on behalf of the SIMS-Trial group. An information aid for newly diagnosed multiple sclerosis patients improves disease knowledge and satisfaction with care. Multiple Sclerosis, 2010; 16: 13931405.
  • 18
    Giordano A, Uccelli MM, Pucci E, on behalf of the SIMS-Trial group. The Multiple Sclerosis Knowledge Questionnaire: a self-administered instrument for recently diagnosed patients. Multiple Sclerosis, 2010; 16: 100111.
  • 19
    Solari A, Mattarozzi K, Vignatelli L, on behalf of the SIMS-Trial group and of the GERONIMUS group. Development and validation of a patient self-assessed questionnaire on satisfaction with communication of the multiple sclerosis diagnosis. Multiple Sclerosis, 2010; 16: 12371247.
  • 20
    Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica, 1983; 67: 361370.
  • 21
    Costantini M, Musso M, Viterbori P et al. Detecting psychological distress in cancer patients: validity of the Italian version of the Hospital Anxiety and Depression Scale. Supportive Care in Cancer, 1999; 7: 121127.
  • 22
    Degner LF, Sloan JA, Venkatesh P. The control preference scale. The Canadian Journal of Nursing Research, 1997; 29: 2143.
  • 23
    Giordano A, Mattarozzi K, Pucci E et al. Participation in medical decision-making: attitudes of Italians with multiple sclerosis. Journal of the Neurological Sciences, 2008; 275: 8691.
  • 24
    Denzin NK, Lincoln YS. Handbook of Qualitative Research. London: Sage, 2000.
  • 25
    Silverman D. Interpreting Qualitative Data. London: Sage, 1993.
  • 26
    Crabtree BF, Miller WL. Doing Qualitative Research. London: Sage, 1992.
  • 27
    Mc Cracken G. The Long Interview. London: Sage, 1988.
  • 28
    National Collaborating Centre for Chronic Conditions. Multiple Sclerosis: National Clinical Guideline for Diagnosis and Management in Primary and Secondary Care (NICE Clinical Guideline 8). London, GB: Royal College of Physicians, 2004.
  • 29
    Prunty MC, Sharpe L, Butow P, Fulcher G. The motherhood choice: a decision aid for women with multiple sclerosis. Patient Education and Counseling, 2008; 71: 108115.
  • 30
    Janssens AC, van Doorn PA, de Boer JB, van der Meché FG, Passchier J, Hintzen RQ. Impact of recently diagnosed multiple sclerosis on quality of life, anxiety, depression and distress of patients and partners. Acta Neurologica Scandinavica, 2003; 108: 389395.
  • 31
    Chalfant AM, Richard A, Bryant RA, Fulcher G. Posttraumatic stress disorder following diagnosis of multiple sclerosis. Journal of Traumatic Stress, 2004; 17: 423428.