Preparing for transition? The allocation of oral medication regimen tasks in adolescents with renal transplants

Authors

  • Ahna L. H. Pai,

    1. Center for the Promotion of Treatment Adherence and Self-Management, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA
    2. Department of Pediatrics, University of Cincinnati School of Medicine, Cincinnati, OH, USA
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  • Lisa M. Ingerski,

    1. Center for the Promotion of Treatment Adherence and Self-Management, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA
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  • Lauren Perazzo,

    1. Department of Psychology, Xavier University, Cincinnati, OH, USA
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  • Christina Ramey,

    1. Center for the Promotion of Treatment Adherence and Self-Management, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA
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  • Margaret Bonner,

    1. Center for the Promotion of Treatment Adherence and Self-Management, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA
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  • Jens Goebel

    1. Department of Pediatrics, University of Cincinnati School of Medicine, Cincinnati, OH, USA
    2. Division of Nephrology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA
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Ahna L.H. Pai, PhD, Center for the Promotion of Treatment Adherence and Self-Management, Cincinnati Children’s Hospital Medical Center, 3333 Burnet Ave., MLC 7039, Cincinnati, OH 45229-3039, USA
Tel.: 513-803-0406
Fax: 513-803-0415
E-mail: ahna.pai@cchmc.org

Abstract

Pai ALH, Ingerski LM, Perazzo L, Ramey C, Bonner M, Goebel J. Preparing for transition? The allocation of oral medication regimen tasks in adolescents with renal transplants.
Pediatr Transplantation 2011: 15:9–16. © 2010 John Wiley & Sons A/S.

Abstract:  A mixed-methods design was utilized to examine strategies that families use to manage the post-transplant oral medication regimen of adolescents with renal transplants. Seventeen adolescents and their caregivers were administered structured interviews assessing the tasks that families identified as comprising the oral medication regimen, how tasks were allocated across family members and how the dyad decided on the allocation of tasks. Adherence was assessed via electronic pill bottles and calculated by dividing the number of doses taken by those prescribed. Patients and their caregivers identified the following tasks as part of the oral medication regimen: filling the pillbox (71%), calling for refills (65%) and verifying that the pillbox is filled correctly (47%). Adult caregivers were primarily responsible for managing the medication regimen for the majority of adolescents (70%). Secondary analyses revealed that the number of oral medication regimen tasks identified by the dyad was significantly associated with patient adherence. Our findings highlight the need to bolster efforts to develop methods to quantitatively assess and promote self-management skills among adolescents with renal transplants.

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