Validation of a health administrative data algorithm for assessing the epidemiology of diabetes in Canadian children

Authors

  • Astrid Guttmann,

    Corresponding author
    1. Institute for Clinical Evaluative Sciences, Toronto, Ontario, Canada
    2. Division of Paediatric Medicine, The Hospital for Sick Children, Toronto, Ontario, Canada
    3. Department of Paediatrics, Faculty of Medicine, University of Toronto, Ontario, Canada
    4. Department of Health Policy, Management and Evaluation, University of Toronto, Ontario, Canada
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  • Meranda Nakhla,

    1. Division of Endocrinology, Children's Hospital of Eastern Ontario, Ottawa, Ontario, Canada
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  • Melanie Henderson,

    1. Department of Epidemiology, Biostatistics and Occupational Health, McGill University, Montreal, Quebec, Canada
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  • Teresa To,

    1. Institute for Clinical Evaluative Sciences, Toronto, Ontario, Canada
    2. Department of Health Policy, Management and Evaluation, University of Toronto, Ontario, Canada
    3. Child Health Evaluative Sciences, Research Institute, The Hospital for Sick Children, Ontario, Canada
    4. Dalla Lana School of Public Health, University of Toronto, Ontario, Canada
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  • Denis Daneman,

    1. Department of Paediatrics, Faculty of Medicine, University of Toronto, Ontario, Canada
    2. Department of Health Policy, Management and Evaluation, University of Toronto, Ontario, Canada
    3. Child Health Evaluative Sciences, Research Institute, The Hospital for Sick Children, Ontario, Canada
    4. Division of Endocrinology, The Hospital for Sick Children, Toronto, Ontario, Canada
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  • Karen Cauch-Dudek,

    1. Institute for Clinical Evaluative Sciences, Toronto, Ontario, Canada
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  • Xuesong Wang,

    1. Institute for Clinical Evaluative Sciences, Toronto, Ontario, Canada
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  • Kelvin Lam,

    1. Institute for Clinical Evaluative Sciences, Toronto, Ontario, Canada
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  • Jan Hux

    1. Institute for Clinical Evaluative Sciences, Toronto, Ontario, Canada
    2. Department of Health Policy, Management and Evaluation, University of Toronto, Ontario, Canada
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Dr Astrid Guttmann, MDCM, MSc, Institute for Clinical Evaluative Sciences 2075 Bayview Avenue, G106 Toronto, Ontario Canada, M4N 3M5.
Tel: 416 480-4055 x3783;
fax: 416 480-6048;
e-mail: astrid.guttmann@ices.on.ca

Abstract

Guttmann A, Nakhla M, Henderson M, To T, Daneman D, Cauch-Dudek K, Wang X, Lam K, Hux J. Validation of a health administrative data algorithm for assessing the epidemiology of diabetes in Canadian children.

Objective: To validate a case definition of pediatric diabetes using administrative health data and describe trends in incidence and prevalence over time in Ontario, Canada.

Methods: We sampled hospital records of 700 children from 1994 to 2003 with a prior history of at least one outpatient or hospital record for diabetes mellitus and 300 randomly selected children with no diabetes records. We defined patients as having diabetes based on diagnoses and drug utilization from chart abstraction and compared sensitivity and specificity of a number of combinations of overall health care use using administrative data to develop a highly specific definition. We used Poisson regression to test changes in incidence over time (1994–2003).

Results: Use of four physician claims and no hospital records over a 2-yr period yielded the most specific definition (83% sensitivity, 99% specificity). Using this definition overall age/sex standardized incidence per 100 000 was 32.3 [95% confidence intervals (CI) 30.4, 34.4] and prevalence 241.5 per 100 000 (95% CI 236.2–249.9) in 2003/2004. Overall incidence differs by age, (peaking in 10–14 yr olds) but not significantly by sex. The overall incidence has increased on average by 3.1% per year since 1994 (95% CI 1.02–1.04), with no difference in the rate of increase by age.

Conclusions: Population-based surveillance of diabetes in children is possible using administrative data. This will facilitate further study of trends in incidence but also in use of health services and outcomes. Further work to differentiate type 1 and 2 diabetes will be important.

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