Assessing diabetes-related quality of life of youth with type 1 diabetes in routine clinical care: the MIND Youth Questionnaire (MY-Q)
Article first published online: 31 MAY 2012
© 2012 John Wiley & Sons A/S
Volume 13, Issue 8, pages 638–646, December 2012
How to Cite
Assessing diabetes-related quality of life of youth with type 1 diabetes in routine clinical care: the MIND youth questionnaire (MY-Q), , , , , , , , , , .
- Issue published online: 22 NOV 2012
- Article first published online: 31 MAY 2012
- Manuscript Revised: 28 MAR 2012
- Manuscript Accepted: 28 MAR 2012
- Manuscript Received: 7 MAR 2012
- health-related quality of life;
- type 1 diabetes;
It is recommended to assess health-related quality of life (HRQoL) in teenagers with diabetes as part of their ongoing medical care. Here, we describe the development and psychometric evaluation of the Monitoring Individual Needs in Diabetes Youth Questionnaire (MY-Q), a multi-dimensional self-report HRQoL questionnaire designed for use in pediatric diabetes care.
Design and methods
In expert meetings, characteristics and domains of interest were defined. Existing questionnaires were reviewed, topics selected, and new items added, resulting in the 36-item MY-Q. To test face validity, we interviewed 22 teenagers. In addition, 84 teenagers with type 1 diabetes (age 10–18 yr) completed the MY-Q and Pediatric Quality of Life Inventory (PedsQL) generic and diabetes-modules to examine psychometric properties. Hemoglobin A1c (HbA1c) values were obtained by chart audit.
The MY-Q consists of seven subscales (social impact, parents, diabetes control perceptions, responsibility, worries, treatment satisfaction, and body image and eating behavior) as well as general HRQoL and emotional well-being. Cronbach's alpha for the total scale was 0.80. Strong correlations between MY-Q total and PedsQL generic and diabetes-module scores (r = 0.58 and r = 0.71, p < 0.001) confirmed concurrent validity. Higher HbA1c was associated with lower diabetes control perceptions (r = −0.35, p = 0.001), worries (r = −0.24, p = 0.029), and body image and eating behavior (r = −0.26, p = 0.019) scores. Younger age was associated with higher diabetes control perceptions (r = −0.26, p = 0.020) and body image and eating behavior (r = −0.23, p = .038), and lower responsibility (r = 0.25, p = 0.027) scores.
The MY-Q is the first HRQoL questionnaire designed for use in clinical care. It has acceptable measurement properties and seems suitable for implementation in routine care of teenagers with diabetes.