The authors of this paper do not have any commercial associations that might pose a conflict of interest in connection with this manuscript.
Prevalence and correlates of burden among caregivers of patients with bipolar disorder enrolled in the Systematic Treatment Enhancement Program for Bipolar Disorder
Article first published online: 5 APR 2007
Volume 9, Issue 3, pages 262–273, May 2007
How to Cite
Perlick, D. A., Rosenheck, R. A., Miklowitz, D. J., Chessick, C., Wolff, N., Kaczynski, R., Ostacher, M., Patel, J., Desai, R. and the STEP-BD Family Experience Collaborative Study Group (2007), Prevalence and correlates of burden among caregivers of patients with bipolar disorder enrolled in the Systematic Treatment Enhancement Program for Bipolar Disorder. Bipolar Disorders, 9: 262–273. doi: 10.1111/j.1399-5618.2007.00365.x
Charles Bowden, MD; Jodi Gonzalez, PhD (University of Texas); Joseph Calabrese, MD (Case-Western Reserve University); Jenifer Culver, PhD; Terence Ketter, MD (Stanford University); Mark Fosse, MD (University of Kansas); Lauren Marangell, MD (Baylor College of Medicine); and Andrew A. Nierenberg, MD (Massachusetts General Hospital).
- Issue published online: 5 APR 2007
- Article first published online: 5 APR 2007
- Received 13 June 2005, revised and accepted for publication 4 April 2006
- bipolar disorder;
- caregiver burden;
Objectives: Caring for a relative with schizophrenia or dementia is associated with reports of high caregiver burden, symptoms of depression, poor physical health, negligence of the caregiver's own health needs, elevated health service use, low use of social supports, and financial strain. This study presents the design and preliminary data on the costs and consequences of caring for a relative or friend with bipolar disorder from the Family Experience Study, a longitudinal study of the primary caregivers to 500 patients enrolled in the Systematic Treatment Enhancement Program for Bipolar Disorder.
Methods: Subjects were primary caregivers of 500 patients with bipolar disorder diagnosed by the Mini International Neuropsychiatric Interview and the Affective Disorder Evaluation. Caregivers were evaluated within 1 month after patients entered Systematic Treatment Enhancement Program using measures of burden, coping, health/mental health, and use of resources and costs.
Results: Eighty-nine percent, 52%, and 61% of caregivers, respectively, experienced moderate or higher burden in relation to patient problem behaviors, role dysfunction, or disruption of household routine. High burden caregivers reported more physical health problems, depressive symptoms, health risk behavior and health service use, and less social support than less burden caregivers. They also provided more financial support to their bipolar relative.
Conclusions: Burdens experienced by family caregivers of people with bipolar disorder are associated with problems in health, mental health, and cost. Psychosocial interventions targeting the strains of caregiving for a patient with bipolar disorder are needed.