The authors would like to acknowledge the contribution of Dr Marlene Reimer, who has since passed away. They would like to dedicate this article to her memory.
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Partnerships in specialty care: Exploring rural haemophilia provider resource needs
Article first published online: 10 OCT 2006
DOI: 10.1111/j.1440-1584.2006.00806.x
Additional Information
How to Cite
Pritchard, A. M., Reimer, M., Simonson, K. and Oberle, K. (2006), Partnerships in specialty care: Exploring rural haemophilia provider resource needs. Australian Journal of Rural Health, 14: 184–189. doi: 10.1111/j.1440-1584.2006.00806.x
Publication History
- Issue published online: 10 OCT 2006
- Article first published online: 10 OCT 2006
- Accepted for publication 14 July 2006.
- Abstract
- Article
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Keywords:
- haemophilia;
- healthcare team;
- needs;
- qualitative research;
- rural
Abstract
Objective: The purpose of this study was to determine whether rural providers have adequate preparation for safe and effective haemophilia care.
Design: This qualitative study proceeded in two phases: focus group (phase I) and telephone (phase II) interviews.
Setting: Five Canadian rural hospitals served by one urban haemophilia treatment centre and providing service to at least one haemophilia family.
Participants: Phase I: focus groups of rural health professionals (site 1: n = 5; site 2: n = 6), including nursing, medicine and lab technology. Phase II: telephone interviews with nine participants from nursing, medicine, lab technology, social work and physiotherapy across three sites.
Main outcome measures: Qualitative content analysis yielded categorical themes for specialty care resource requirements in a rural context.
Results: Resource needs reflected five main categories: communication network, subjective knowledge, team roles, objective knowledge and partnerships (C-STOP).
Conclusions: The five C-STOP categories require resources and alignment of urban specialist, rural provider and family expertise. Specialty clinic efforts promoting self-care are incomplete without matched resources for rural providers.
Key Terms:
• Haemophilia (A and B) refers to a deficiency in factor VIII or IX, with associated bleeding of post-traumatic or spontaneous origin as potentially life or limb threatening1
• Rural refers to those communities beyond a 30-min commuting distance2 to the tertiary-based haemophilia treatment centre.