Get access

Reasons for attending and not attending a support group for recipients of implantable cardioverter defibrillators and their carers

Authors

  • Anne M Williams RN PhD,

    Corresponding author
    1. Research Fellow in Clinical Nursing, Centre for Nursing Research, Sir Charles Gairdner Hospital, Perth, WA, Australia, and Post Doctoral Research Fellow, School of Nursing and Public Health, Edith Cowan University, Perth, WA, Australia
      Anne Williams, Centre for Nursing Research, Sir Charles Gairdner Hospital, ‘R’ Block 3rd Floor South Wing, Hospital Avenue, Nedlands, WA 6009, Australia.
      Email: Anne.M.Williams@health.wa.gov.au
    Search for more papers by this author
  • Jeanne Young RN BSc(Hons) PhD(Cand),

    1. Clinical Nurse Consultant (Research), Centre for Nursing Research, Sir Charles Gairdner Hospital, Perth, WA, Australia, and Adjunct Senior Lecturer, School of Nursing and Public Health, Edith Cowan University, Perth, WA, Australia
    Search for more papers by this author
  • Sue Nikoletti RN PhD,

    1. Director, Aged Care Nursing Research Program, Centre for Nursing Research, Sir Charles Gairdner Hospital, Perth, WA, Australia, and Associate Professor, School of Nursing and Public Health, Edith Cowan University, Perth, WA, Australia
    Search for more papers by this author
  • Shelley McRae RN BHlthSc(Nsg)

    1. Cardiac Rehabilitation Nurse, Sir Charles Gairdner Hospital, Perth, WA, Australia
    Search for more papers by this author

Anne Williams, Centre for Nursing Research, Sir Charles Gairdner Hospital, ‘R’ Block 3rd Floor South Wing, Hospital Avenue, Nedlands, WA 6009, Australia.
Email: Anne.M.Williams@health.wa.gov.au

Abstract

There is evidence to suggest that people who have an implantable cardioverter defibrillator and their caregivers experience psychological distress. This qualitative descriptive study explored the experiences, concerns and needs of recipients of implantable cardioverter defibrillators and their caregivers who attended or did not attend a support group organized by a public hospital located in Perth, Western Australia, Australia. Eleven recipients of implantable cardioverter defibrillators and their caregivers participated in this study. Among those who attended the support group, four major themes were identified: providing information, connecting with others, helping others and attendance. Explanations for non-attendance included difficulties attending because of the location, not wanting to be reminded about the implantable cardioverter defibrillator, and a perception, among younger recipients, that the support group was comprised of mainly older recipients with whom they had little in common.

Get access to the full text of this article

Ancillary