Impacts of national surveillance for uncommon conditions in childhood

Authors

  • Yvonne A Zurynski,

    Corresponding author
    1. Australian Paediatric Surveillance Unit, The Children's Hospital at Westmead, Westmead,
    2. Discipline of Paediatrics and Child Health, Faculty of Medicine, The University of Sydney, Sydney, New South Wales,
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  • Elizabeth Peadon,

    1. Australian Paediatric Surveillance Unit, The Children's Hospital at Westmead, Westmead,
    2. Discipline of Paediatrics and Child Health, Faculty of Medicine, The University of Sydney, Sydney, New South Wales,
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  • Carol Bower,

    1. Centre for Child Health Research, The University of Western Australia, Telethon Institute of Child Health Research, West Perth, Western Australia, Australia
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  • Elizabeth J Elliott

    1. Australian Paediatric Surveillance Unit, The Children's Hospital at Westmead, Westmead,
    2. Discipline of Paediatrics and Child Health, Faculty of Medicine, The University of Sydney, Sydney, New South Wales,
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Dr Yvonne Zurynski, Australian Paediatric Surveillance Unit, The Children's Hospital at Westmead, Locked Bag 4001, Westmead, NSW 2145, Australia. Fax: +61 2 9845 3082; email: yvonnez@chw.edu.au

Abstract

Abstract:  The Australian Paediatric Surveillance Unit (APSU) facilitates the conduct of national collaborative research that is consistent with national health priorities, has potential to impact on public health, and addresses gaps in knowledge. Since 1993 paediatricians and other child health specialists have contributed monthly data on rare childhood conditions to the APSU. Over 40 conditions, including infectious diseases, injuries, vaccine-preventable diseases and genetic disorders have been studied. Information on epidemiology, frequency, diagnosis, management and short-term outcomes of these conditions is collected and provides evidence to support changes to clinical practice, prevention policy and allocation of health resources. In this review we give examples of the value of information gathered through the APSU surveillance system in the last 14 years.

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