Paediatric biobanks: What makes them so unique?
Article first published online: 29 APR 2011
© 2011 The Authors. Journal of Paediatrics and Child Health © 2011 Paediatrics and Child Health Division (Royal Australasian College of Physicians)
Journal of Paediatrics and Child Health
Volume 48, Issue 2, pages E1–E3, February 2012
How to Cite
Samuël, J., Knoppers, B. M. and Avard, D. (2012), Paediatric biobanks: What makes them so unique?. Journal of Paediatrics and Child Health, 48: E1–E3. doi: 10.1111/j.1440-1754.2011.02072.x
- Issue published online: 9 FEB 2012
- Article first published online: 29 APR 2011
- Accepted for publication 21 December 2010.
- parental consent;
- paediatric biobank;
Paediatric biobanks store and organise the biological material of children. They are an invaluable resource for the study of the development, health and behaviour of children. International norms for the management of adult biobanks exist, but paediatric biobanks require distinct policies to account for the needs of children, their general incapacity, and their intellectual development throughout the life of the biobank. Because of their particular nature we revisit the issues of consent, the return of research results, and privacy, and discuss how each could be modulated in the paediatric context. We recognize that such modifications entail further financial and logistical complications but maintain that it is essential that paediatric biobanks consider these issues and adapt their biobanks management policies accordingly, rather than extrapolate the current adult-based norms and jeopardise the rights of child participants.