Cross sectional survey on the concerns and anxiety of patients waiting for organ transplants
Article first published online: 24 JUN 2012
© 2012 The Authors. Nephrology © 2012 Asian Pacific Society of Nephrology
Volume 17, Issue 5, pages 514–518, July 2012
How to Cite
LI, P. K.-T., CHU, K. H., CHOW, K. M., LAU, M. F., LEUNG, C. B., KWAN, B. C. H., TONG, Y. F., SZETO, C. C. and NG, M. M. M. (2012), Cross sectional survey on the concerns and anxiety of patients waiting for organ transplants. Nephrology, 17: 514–518. doi: 10.1111/j.1440-1797.2012.01615.x
- Issue published online: 24 JUN 2012
- Article first published online: 24 JUN 2012
- Accepted manuscript online: 7 MAY 2012 03:15AM EST
- Accepted for publication 16 April 2012.; Accepted manuscript online 7 May 2012.
- waiting list
Aim: We aimed to gain an understanding of patient concerns while on a transplantation waiting list in areas with long transplant waiting time.
Methods: The study population comprised patients with organ failure on the transplant waiting list in Hong Kong. They were invited to complete a questionnaire survey. Demographic data and waiting time were collected. Respondents rated their chance of getting transplanted, their subjective concerns and feelings, level of happiness and support received.
Results: A total of 442 patients on the waiting list for kidney, liver, lung and heart-lung transplants completed the questionnaire survey. The majority of patients (93.0%) were waiting for kidney transplantation. More than half of the respondents (63.3%) had been waiting for more than 3 years. Patients with longer transplant waiting times had lower self-estimated chance of receiving a transplant (P = 0.004). Self-estimated chance of getting transplanted was positively associated with the happiness score (P < 0.0001). Issues of most concerns to the patients waiting for organ transplants were: inconvenience of therapy (48.2%), disease progression (47.9%), burden to family (59.5%) and financial difficulties (52.3%). More female patients on the waiting list (50.0% vs 25.7% in male) reported concerns about suffering associated with the illnesses. 21.7% of patients considered the level of support received inadequate.
Conclusions: Our patients had long waiting time for transplantation, which is associated with a lower perceived chance of getting a transplant. Attention to more psychosocial support to these patients waiting for organ transplant is important. Promoting and improving organ donation would be the ultimate way to help these patients.