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Validity of self-reported cardiovascular disease events in comparison to medical record adjudication and a statewide hospital morbidity database: the AusDiab study

Authors

  • E. L. M. Barr,

    Corresponding author
    1. 1 Department of Epidemiology and Clinical Diabetes, Baker IDI Heart and Diabetes Institute, Melbourne and 2Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Victoria and 3Department of Medicine, University of Western Australia, Perth, Western Australia, Australia
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  • 1,2 A. M. Tonkin,

    1. 1 Department of Epidemiology and Clinical Diabetes, Baker IDI Heart and Diabetes Institute, Melbourne and 2Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Victoria and 3Department of Medicine, University of Western Australia, Perth, Western Australia, Australia
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  • 2 T. A. Welborn,

    1. 1 Department of Epidemiology and Clinical Diabetes, Baker IDI Heart and Diabetes Institute, Melbourne and 2Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Victoria and 3Department of Medicine, University of Western Australia, Perth, Western Australia, Australia
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  • and 3 J. E. Shaw 1,2

    1. 1 Department of Epidemiology and Clinical Diabetes, Baker IDI Heart and Diabetes Institute, Melbourne and 2Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Victoria and 3Department of Medicine, University of Western Australia, Perth, Western Australia, Australia
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  • Funding: E. L. M. B. is supported by a National Health and Medical Research Council (NHMRC; 379305)/National Heart Foundation Australia (PP 05M 2346) joint postgraduate scholarship. The AusDiab study co-ordinated by the Baker IDI Heart and Diabetes Institute, gratefully acknowledges the generous support given by: NHMRC (grant 233200), National Heart Foundation Australia (Research Grant-in-Aid RES17-01 2005).

    Potential conflicts of interests: None

Abstract

Epidemiological studies often rely on self-reported cardiovascular disease (CVD) information, but this may be inaccurate. We investigated the accuracy of self-reported CVD (myocardial infarction, stroke, coronary artery bypass surgery and coronary artery angioplasty) during the follow up of the Australian Diabetes, Obesity and Lifestyle (AusDiab) study. Self-reported CVD events, including the date of the event and hospital admission details, were collected with an interviewer-administered questionnaire. Of the 276 self-reported CVD events, 188 (68.1%) were verified by adjudication of medical records. Furthermore, linkage to the statewide Western Australian Hospital Morbidity Database (WAHMD) showed that CVD events were unlikely to be missed, with only 0.2% of those denying any CVD event being recorded as having had an event on the WAHMD. The adjudication of medical records was as accurate as record linkage to the WAHMD for validation of self-reported CVD, but combining the results from both methods of ascertainment improved CVD event identification.

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