TRUSTED CONSENT AND RESEARCH BIOBANKS: TOWARDS A ‘NEW ALLIANCE’ BETWEEN RESEARCHERS AND DONORS
Version of Record online: 17 MAY 2010
© 2010 Blackwell Publishing Ltd.
Volume 26, Issue 2, pages 93–100, February 2012
How to Cite
BONIOLO, G., DI FIORE, P. P. and PECE, S. (2012), TRUSTED CONSENT AND RESEARCH BIOBANKS: TOWARDS A ‘NEW ALLIANCE’ BETWEEN RESEARCHERS AND DONORS. Bioethics, 26: 93–100. doi: 10.1111/j.1467-8519.2010.01823.x
- Issue online: 19 JAN 2012
- Version of Record online: 17 MAY 2010
- new alliance
We argue that, in the case of research biobanks, there is a need to replace the currently used informed consent with trusted consent. Accordingly, we introduce a proposal for the structure of the latter. Further, we discuss some of the issues that can be addressed effectively through our proposal. In particular, we illustrate: i) which research should be authorized by donors; ii) how to regulate access to information; iii) the fundamental role played by a Third Party Authority in assuring compliance with the reciprocal expectations and obligations of donors and scientists. Finally, we briefly analyse two issues that might represent important elements of a ‘new alliance’ between researchers and donors to which the trusted consent could pave the way: i) the correlations between needs and rights of the two parties, and ii) possible economic transactions.