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References

  • Addington-Hall, J. and McPherson, C. (2001) After-death interviews with surrogates/bereaved family members: some issues of validity, Journal of Pain and Symptom Management, 22, 3, 78490.
  • Aspinal, F., Addington-Hall, J., Hughes, R. and Higginson, I.R. (2003) Using satisfaction to measure the quality of palliative care: a review of the literature, Journal of Advanced Nursing, 42, 4, 32439.
  • Atkinson, P., Coffey, C. and Delamont, S. (2003) Key Themes in Qualitative Research: Continuities and Change. Walnut Creek: Alta Mira Press.
  • Attree, M. (2001) Patients’ and relatives’ experiences and perspectives of ‘good’ and ‘not so good’ quality care, Journal of Advanced Nursing, 33, 4, 45666.
  • Avis, M., Bond, M. and Arthur, A. (1995) Satisfying solutions? A review of some unresolved issues in the measurement of patient satisfaction, Journal of Advanced Nursing, 22, 2, 31622.
  • Cain, R., MacLean, M. and Sellick, S. (2004) Giving support and getting help: informal caregivers’ experiences with palliative care services, Palliative and Supportive Care, 2, 3, 26572.
  • Coyle, J. (1999) Exploring the meaning of ‘dissatisfaction’ with health care: the importance of ‘personal identity threat’, Sociology of Health and Illness, 21, 1, 95124.
  • Davis, C.G., Nolen-Hoeksema, S. and Larson, J. (1998) Making sense of loss and benefiting from the experience: two construals of meaning Journal of Personality and Social Psychology, 75, 2, 56174.
  • Edwards, C. and Staniszewska, S. (2000) Accessing the user’s perspective, Health and Social Care in the Community, 8, 6, 41724.
  • Edwards, C., Staniszweska, S. and Crichton, N. (2004) Investigation of the ways in which patients’ reports of their satisfaction with healthcare are constructed, Sociology of Health and Illness, 26, 2, 15983.
  • Fitzpatrick, R. and Hopkins, A. (1983) Problems in the conceptual framework of patient satisfaction research: an empirical exploration, Sociology of Health and Illness, 5, 3, 297311.
  • Garfinkel, H. (1967) Studies in Ethnomethodology. Englewood Cliffs: Prentice-Hall.
  • Goldschmidt, D., Schmidt, L., Krasnik, A., Christensen, U., et al. (2006) Expectations to and evaluation of a palliative home-care team as seen by patients and carers, Supportive Care in Cancer, 14, 12, 123240.
  • Gubrium, J.F. and Holstein, J.A. (1997) The New Language of Qualitative Method. New York: Oxford.
  • Gubrium, J.F. and Holstein, J.A. (2000) Analyzing interpretive practice. In Denzin, N.K. and Lincoln, Y.S. (eds) Handbook of Qualitative Research. Thousand Oaks: Sage.
  • Haas, M. (1999) A critique of patient satisfaction, Health Information Management, 29, 1, 913.
  • Heyland, D.K., Dodek, P., Rocker, G., Groll, D., et al. (2006) What matters most in end-of-life care: perceptions of seriously ill patients and their family members, Canadian Medical Association Journal, 174, 5, 62733.
  • Heyland, D.K., Groll., D., Rocker, G., Dodek, P., et al. (2005) End-of-life care in acute care hospitals in Canada: a quality finish? Journal of Palliative Care, 21, 3, 14250.
  • Holland, J.M., Currier, J.M. and Neimeyer, R.A. (2006) Meaning reconstruction in the first two years of bereavement: the role of sense-making and benefit-finding, OMEGA: Journal of Death and Dying, 53, 3, 17591.
  • Holstein, J.A. and Gubrium, J.F. (1997) Active interviewing. In Silverman, D. (ed.) Qualitative Research: Theory, Method and Practice. London: Sage.
  • Hyrkas, K. and Paunonen, M. (2000) Patient satisfaction and research-related problems. (Part 2) Is triangulation the answer? Journal of Nursing Management, 8, 4, 23745.
  • Hyrkas, K., Paunonen, M. and Laippala, P. (2000) Patient satisfaction and research-related problems. (Part 1) Problems while using a questionnaire and the possibility to solve them by using different methods of analysis, Journal of Nursing Management, 8, 4, 22736.
  • Ingleton, C., Morgan, J., Hughes, P, Noble, B., et al. (2004) Carer satisfaction with end-of-life care in Powys, Wales: a cross-sectional survey, Health and Social Care in the Community, 12, 1, 4352.
  • Kirk, P., Kirk, I. and Kristjanson, L.J. (2004) What do patients receiving palliative care for cancer and the families want to be told: a Canadian and Australian qualitative study, British Medical Journal, 328, 7452, 1343.
  • McLaughlin, D., Sullivan, K. and Hasson, F. (2007) Hospice at home service: the carer’s perspective, Supportive Care in Cancer, 15, 2, 16370.
  • McPherson, C. and Addington-Hall, J. (2004) How do proxies’ perceptions of patient’s pain, anxiety and depression change during the bereavement period? Journal of Palliative Care, 20, 1, 129.
  • Milberg, A. and Strang, P. (2007) What to do when ‘there is nothing more to do’? A study within a salutogenic framework of family members’ experience of palliative home care staff, Psycho-Oncology, 16, 8, 74151.
  • Morss D.S., Shugarman, L.R., Lorenz, K.A, Mularski, R.A. and Lynn, J. (2008) A systematic review of satisfaction with care at the end of life, Journal of the American Geriatrics Society, 56, 1, 12429.
  • Munn, J.C. and Zimmerman, S. (2006) A good death for residents of long-term care: family members speak, Journal of Social Work in End-Of-Life and Palliative Care, 2, 3, 4559.
  • NVivo (2008) NVivo qualitative data analysis software, Version 8. Melbourne: QSR International.
  • Payne, S., Hawker, S., Kerr, C., Seamark, D., et al. (2007) Experiences of end-of-life care in community hospitals, Health and Social Care in the Community, 15, 5, 494501.
  • Rogers, A., Karlsen, S. and Addington-Hall, J. (2000) ‘All the services were excellent. It is when the human element comes in that things go wrong’: dissatisfaction with hospital care in the last year of life, Journal of Advanced Nursing, 31, 4, 76874.
  • Schwandt, T.A. (2000) Three epistemological stances for qualitative inquiry: interpretivism, hermeneutics, and social constructionism. In Denzin, N.K. and Lincoln, Y.S. (eds) Handbook of Qualitative Research. Thousand Oaks: Sage.
  • Sinding, C. (2003) Disarmed complaints: unpacking satisfaction with end-of-life care, Social Science and Medicine, 57, 8, 137585.
  • Sinding, C. and Aronson, J. (2003) Exposing failures, unsettling accommodations: tensions in interview practice, Qualitative Research, 3, 1, 95117.
  • Sitzia, J. and Wood, N. (1997) Patient satisfaction: a review of issues and concepts, Social Science and Medicine, 45, 12, 182943.
  • Stajduhar, K., Funk, L.M., Cohen, S.R., Williams, A., et al. (2011) Bereaved family members’ assessments of the quality of EOL care: what is important? Journal of Palliative Care, 27, 4, 2619.
  • Steinhauser, K.E., Christakis, N.A., Clipp, E.C., McNeilly, M., et al. (2000) Factors considered important at the end of life by patients, family, physicians, and other care providers, Journal of the American Medical Association, 284, 19, 247682.
  • Teno, J., Casey, V., Welch, L. and Edgman-Levitan, S. (2001) Patient-focused, family-centered end-of-life medical care: views of the guidelines and bereaved family members, Journal of Pain and Symptom Management, 22, 3, 73851.
  • Teno, J.M., Clarridge, B.R., Casey, V., Welch, L.C., et al. (2004) Family perspectives on end-of-life care at the last place of care, Journal of the American Medical Association, 291, 1, 8893.
  • Turris, S.A. (2005) Unpacking the concept of patient satisfaction: a feminist analysis, Journal of Advanced Nursing, 50, 3, 29398.
  • Wiles, J. (2003) Informal caregivers’ experiences of formal support in a changing context, Health and Social Care in the Community, 11, 3, 189207.
  • Williams, B. (1994) Patient satisfaction: a valid concept? Social Science & Medicine, 38, 4, 50916.
  • Williams, B., Coyle, J. and Healy, D. (1998) The meaning of patient satisfaction: an explanation of high reported levels, Social Science & Medicine, 47, 9, 13519.
  • Wong, W.K. and Ussher, J. (2009) Bereaved informal cancer carers making sense of their palliative care experiences at home, Health and Social Care in the Community, 17, 3, 27482.