Doing it together (DM Special Issue)
Article first published online: 22 MAY 2012
© 2012 Blackwell Publishing Ltd
British Journal of Learning Disabilities
Special Issue: The research and work of learning disabled people with their allies and supporters
Volume 40, Issue 2, pages 134–142, June 2012
How to Cite
Gary, B., Amanda, C., Nikoletta, G. and Irene, T.-W. (2012), Doing it together (DM Special Issue). British Journal of Learning Disabilities, 40: 134–142. doi: 10.1111/j.1468-3156.2012.00744.x
- Issue published online: 22 MAY 2012
- Article first published online: 22 MAY 2012
- focus groups;
- learning (intellectual) disabilities;
- palliative and terminal care;
- physical illness;
- We are a team of four researchers, two of whom have learning disabilities.
- We did two studies using focus groups with people with learning disabilities. One study was about ‘What is it like for people with learning disabilities to have someone in their family or a friend with cancer?’ The other study was about ‘How to break bad news to people with learning disabilities?’
- This article tells the story of how we did focus groups together. The researchers with learning disabilities helped to plan, to run the groups and to look at the results afterwards.
- We did different things in the focus groups. We talked together and also used storytelling, role-play and voting.
- Researchers with learning disabilities can really help the group to open up and talk about difficult subjects.
This paper presents two studies using focus groups with people with learning disabilities. One study was about ‘What is it like for people with learning disabilities who have a family or friend with cancer?’ and other study was about ‘How to break bad news to people with learning disabilities?’ Two of the researchers had learning disabilities themselves. This article reports how we worked together as a team. The focus groups involved various methods for data collection such as storytelling, role-playing and voting. Researchers with learning disabilities enable participants with learning disabilities to discuss difficult subjects.