• Appleton PL, Ellis NC, Minchom PE, Lawson V, Boll V, Jones P. (1997) Depressive symptoms and self-concept in young people with spina bifida. Journal of Pediatric Psychology 22: 70722.
  • Appleton PL, Minchom PE, Ellis NC, Elliott CE, Boll V, & Jones P. (1994) The self-concept of young people with spina-bifida: a population-based study. Developmental Medicine & Child Neurology 36: 198215.
  • Bailey DB, Blasco PM, Simeonsson RJ. (1992) Needs expressed by mothers and fathers of young children with disabilities. American Journal of Mental Retardation 97: 110.
  • Bailey DB, Simeonsson RJ. (1988) Assessing needs of families with handicapped infants. Journal Of Special Education 22: 11727.
  • Barakat LP, Linney JA. (1992) Children with physical handicaps and their mothers: the interrelation of social support, maternal adjustment, and child adjustment. Journal of Pediatric Psychology 17: 72539.
  • Baron RM, Kenny DA. (1986) The moderator-mediator variable distinction in social psychological research: conceptual, strategic, and statistical considerations. Journal of Personality and Social Psychology 51: 117382.
  • Castree BJ, Walker JH. (1981) The young adult with spina bifida. British Medical Journal 283: 10402.
  • Dorner S. (1975) The relationship of physical handicap to stress in families with an adolescent with spina bifida. Developmental Medicine & Child Neurology 17: 76576.
  • Eiser C. (1997) Children's quality of life measures. Archives Of Disease In Childhood 77: 3504.
  • Goodman R, Yude C. (1996) Do incomplete ascertainment and recruitment matter? A study in childhood hemiplegia. Developmental Medicine & Child Neurology 38: 15665.
  • Graham P, Stevenson J, Flynn D. (1997) Anew measure of health-related quality of life for children: preliminary findings. Psychology and Health 12: 65565.
  • Hastings RP, Brown T. (Forthcoming) Mediating and moderating effects of self-efficacy on the relationship between behavior problems in children with autism and parental anxiety and depression. American Journal on Mental Retardation.
  • Hirst M. (1989) Patterns of impairment and disability related to social handicap in young-people with cerebral palsy and spina-bifida. Journal of Biosocial Science 21: 112.
  • Kazak AE, Barakat LP. (1997) Brief report: parenting stress and quality of life during treatment for childhood leukemia predicts child and parent adjustment after treatment ends. Journal of Pediatric Psychology 22: 74958.
  • Kirpalani HM, Parkin PC, Willan AR, Fehlings DL, Rosenbaum PL, King D, Van Nie AJ. (2000) Quality oflife in spina bifida: importance of parental hope. Archives Of Disease In Childhood 83: 2937.
  • Lavigne JV, Faier-Routman J. (1993) Correlates of psychological adjustment to pediatric physical disorders: a meta-analytic review and comparison with existing models. Journal Of Developmental and Behavioral Pediatrics 14: 11723.
  • Miller JF, Powers MJ. (1988) Development of an instrument to measure hope. Nursing Research 37: 610.
  • Rudeberg A, Donati F, Kaiser G. (1995) Psychosocial aspects in the treatment of children withmyelomeningocele: an assessment after a decade. European Journal of Pediatrics 154: S859.
  • Schaffer J, Friedrich WN, Shurtleff DB, Wolf L. (1985) Cognitive and achievement status of children with myelomeningocele. Journal of Pediatric Psychology 10: 32536.
  • Sloper P, Turner S. (1992) Service needs of families of children with severe physical disability. Child: Care, Health And Development 18: 25982.
  • Sprangers MAG, De Regt EB, Andries F, Van Agt HME, Bijl RV, De Boer JB, Foets M, Hoeymans N, Jacobs AE, Kempen GIJM, Miedema HS, Tyhuis MAR, De Haes HJM. (2000) Which chronic conditions are associated with better or poorer quality of life Journal Of Clinical Epidemiology 53: 895907.
  • Tew B. (1991) The effects of spina bifida and hydrocephalus upon learning and behaviour. In CMBannister and BTew, editors. Current concepts in Spina Bifida & Hydrocephalus. Clinics in Developmental Medicine No. 122. London : Mac Keith Press p 15879.
  • Tin LG, Teasdale GR. (1985) An observational study of the social adjustment of spina bifida children in integrated settings. British Journal of Educational Psychology 55: 813.
  • Viemero V, Krause C. (1998) Quality of life in individuals with physical disabilities. Psychotherapy and Psychosomatics 67: 31722.