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References

  • 1
    Verhoef M, Barf HA, Post MW, Van Asbeck FW, Gooskens RH, Prevo AJ. (2004) Secondary impairments in young adults with spina bifida. Dev Med Child Neurol 46: 420427.
  • 2
    Post MW, De Witte LP, Schrijvers AJ. (1999) Quality of life and the ICIDH: towards an integrated conceptual model for rehabilitation outcomes research. Clin Rehabil 13: 515.
  • 3
    Sawin KJ, Brei TJ, Buran CF, Fastenau PS. (2002) Factors associated with quality of life in adolescents with spina bifida. J Holist Nurs 20: 279304.
  • 4
    Börjeson MC, Lagergren J. (1990) Life conditions of adolescents with myelomeningocele. Dev Med Child Neurol 32: 698706.
  • 5
    Lindstrom B, Eriksson B. (1993) Quality of life for children with disabilities. Soz Praventivmed 38: 8389.
  • 6
    Lindstrom B, Kohler L. (1991) Youth, disability and quality of life. Pediatrician 18: 121128.
  • 7
    Rinck C, Berg J, Hafeman C. (1989) The adolescent with myelomeningocele: a review of parent experiences and expectations. Adolescence 24: 699710.
  • 8
    Hirst M. (1989) Patterns of impairment and disability related to social handicap in young people with cerebral palsy and spina bifida. J Biosoc Sci 21: 112.
  • 9
    Hunt GM, Poulton A. (1995) Open spina bifida: a complete cohort reviewed 25 years after closure. Dev Med Child Neurol 37: 1929.
  • 10
    Appleton PL, Minchom PE, Ellis NC, Elliott CE, Boll V, Jones P. (1994) The self-concept of young people with spina bifida: a population-based study. Dev Med Child Neurol 36: 198215.
  • 11
    Holmbeck GN, Faier-Routman J. (1995) Spinal lesion level, shunt status, family relationships, and psychosocial adjustment in children and adolescents with spina bifida myelomeningocele. J Pediatr Psychol 20: 817832.
  • 12
    Thompson RJ, Kronenberger WG, Johnson DF, Whiting K. (1989) The role of central nervous system functioning and family functioning in behavioral problems of children with myelodysplasia. J Dev Behav Pediatr 10: 242248.
  • 13
    Parkin PC, Kirpalani HM, Rosenbaum PL, Fehlings DL, Van Nie A, Willan AR, King D. (1997) Development of a health-related quality of life instrument for use in children with spina bifida. Qual Life Res 6: 123132.
  • 14
    Kirpalani HM, Parkin PC, Willan AR, Fehlings DL, Rosenbaum PL, King D, Van Nie AJ. (2000) Quality of life in spina bifida: importance of parental hope. Arch Dis Child 83: 293297.
  • 15
    Padua L, Rendeli C, Rabini A, Girardi E, Tonali P, Salvaggio E. (2002) Health-related quality of life and disability in young patients with spina bifida. Arch Phys Med Rehabil 83: 13841388.
  • 16
    Padua L, Rendeli C, Ausili E, Aprile I, Caliandro P, Tonali P, Salvaggio E. (2004) Relationship between the clinical-neurophysiologic pattern, disability, and quality of life in adolescents with spina bifida. J Child Neurol 19: 952957.
  • 17
    Ware JE Jr, Sherbourne CD. (1992) The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 30: 473483.
  • 18
    World Health Organization. (2003) International Classification of Diseases. 9th Revision. Clinical Modification. (Dutch edition) Utrecht : Prismant.
  • 19
    Maynard FM Jr, Bracken MB, Creasey G, Dittuno JFJr, Donovan WH, Ducker TB, Garber SL, Marino RJ, Stover SL, Tator CH, et al. (1997) International standards for neurological and functional classification of spinal cord injury, American Spinal Injury Association. Spinal Cord 35: 266274.
  • 20
    Weststrate JA, Deurenberg P. (1989) Body composition in children: proposal for a method for calculating body fat percentage from total body density or skinfold-thickness measurements. Am J Clin Nutr 50: 11041115.
  • 21
    Aaronson NK, Muller M, Cohen PD, Essink-Bot ML, Fekkes M, Sanderman R, Sprangers MA, Te Velde A, Verrips E. (1998) Translation, validation, and norming of the Dutch language version of the SF-36 Health Survey in community and chronic disease populations. J Clin Epidemiol 51: 10551068.
  • 22
    Minchom PE, Ellis NC, Appleton PL, Lawson V, Boll V, Jones P, Elliott CE. (1995) Impact of functional severity on self concept in young people with spina bifida. Arch Dis Child 73: 4852.
  • 23
    Barf HA, Verhoef M, Post MW, Jennekens-Schinkel A, Gooskens RH, Mullaart RA, Prevo AJ. (2004) Educational career and predictors of type of education in young adults with spina bifida. Int J Rehabil Res 27: 4552.
  • 24
    Schoenmakers M. (2003) Functional aspects of spina bifida in childhood. (Dissertation). University of Utrecht. p 4768.
  • 25
    Sprangers MA, Schwartz CE. (1999) Integrating response shift into health-related quality of life research: a theoretical model. Soc Sci Med 48: 15071515.
  • 26
    Hays RD, Hahn H, Marshall G. (2002) Use of the SF–36 and other health-related quality of life measures to assess persons with disabilities.. Arch Phys Med Rehabil 83 (Suppl. 2): S49.
  • 27
    Andresen EM, Meyers AR. (2000) Health-related quality of life outcomes measures.. Arch Phys Med Rehabil 81 (Suppl. 2): S3045.