Acknowledgments We gratefully acknowledge the contributions of the families who took part in the study and the generous assistance of Sue Reid, manager of the Victorian Cerebral Palsy Register, and the Royal Children’s Hospital orthopaedic department. This study involves secondary analyses of data gathered in a project that was supported by a grant from the Murdoch Childrens Research Institute and the first author’s doctoral scholarships from La Trobe University (2005–2006) and the Australian National Health and Medical Research Council/Cerebral Palsy Foundation (2007–2008). The authors acknowledge the contributions to the larger project by Professors Sheena Reilly and Karen Dodd.
Stability of caregiver-reported manual ability and gross motor function classifications of cerebral palsy
Article first published online: 26 MAY 2009
© The Authors. Journal compilation © Mac Keith Press 2009
Developmental Medicine & Child Neurology
Volume 52, Issue 2, pages 153–159, February 2010
How to Cite
IMMS, C., CARLIN, J. and ELIASSON, A.-C. (2010), Stability of caregiver-reported manual ability and gross motor function classifications of cerebral palsy. Developmental Medicine & Child Neurology, 52: 153–159. doi: 10.1111/j.1469-8749.2009.03346.x
- Issue published online: 15 JAN 2010
- Article first published online: 26 MAY 2009
- PUBLICATION DATA Accepted for publication 16th March 2009. Published online online 26th May 2009.
Aim To examine the stability of caregiver-reported classifications of function of children with cerebral palsy (CP) measured 12 months apart.
Method Participants were 86 children (50 males, 36 females) with CP of all motor types and severities who were recruited into a population-based longitudinal study. Children were aged 11 years 8 months (SD 6mo) on the first assessment and 12 years 8 months (SD 6mo) on the second assessment. Data were gathered through a postal survey. Caregivers reported on the Manual Ability Classification System (MACS), the Gross Motor Function Classification System (GMFCS), and other demographic characteristics. The percentage absolute agreement and the intraclass coefficient correlation (ICC) equivalent of the weighted kappa were calculated to assess consistency between assessments for the MACS and GMFCS. We also examined associations between changes in classification and background variables.
Results Fifty-eight caregivers (67%) classified their child at the same MACS level on both assessments (ICC 0.92; 95% confidence interval [CI] 0.87–0.95), whereas 79% did so with the GMFCS (ICC 0.95; 95% CI 0.92–0.96). The evidence suggests that caregivers who were not born in Australia or who spoke a language other than English in the home were more likely to classify their child differently on the MACS at the second assessment, although this was not evident for the GMFCS.
Interpretation Caregiver-reported MACS and GMFCS levels were generally stable over 12 months.