Aging with cerebral palsy and other disabilities: personal reflections and recommendations

Authors

  • GWYN C JONES PHD

    1. Health Scientist, Centers for Disease Control and Prevention, (CDC), National Center on Birth Defects and Developmental Disabilities, Atlanta, GA, USA.
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  • CONFLICTS OF INTEREST
    The author declares no conflicts of interest.

Gwyn C Jones at Centers for Disease Control and Prevention, 1600 Clifton Road, NE, MS-E88, Atlanta, GA 30333, USA. E-mail: gbj4@cdc.gov

Abstract

This article describes the lived experience of one 64-year-old woman who is aging with cerebral palsy (CP) and other multiple disabilities. Reflections are offered on coping with secondary conditions and functional decline; fighting the effects of pain and fatigue; and managing well-meaning, but misdirected, medical advice. Recommendations based on the author’s personal and professional experience with disabilities, including CP, are presented on the aging process and on preventive care for adults living with CP.

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