Abstract
- Top of page
- Abstract
- INTRODUCTION
- METHODS
- RESULTS
- DISCUSSION
- ACKNOWLEDGMENTS
- REFERENCES
Background: An increasing number of old people, and their medical requirements, cannot be managed by their families in their homes, which has been the traditional and prevalent practice in Japan. The number of people with dementia is increasing and behavioral and psychological symptoms of dementia (BPSD) make care difficult. In the present study, we investigated management techniques for BPSD in long-term care facilities in Japan by using the data mining method, which looks at the reported behaviors of care providers.
Methods: First, interviews were conducted with 15 care providers to develop items for a questionnaire. These data were analyzed qualitatively and synthesized with criteria from the professional literature. The resulting self-report questionnaire on techniques used to manage different symptoms of dementia was completed by 275 care providers. We applied the association rule as a data mining method examining 15 management techniques related to 13 BPSD.
Results: Analysis identified four types of management techniques: (i) emotional and behavior-concordance techniques; (ii) acceptance and supportive techniques; (iii) restraining techniques; and (iv) avoidance techniques. Different management techniques, and combinations of techniques, were found to vary in use and effectiveness with different BPSD.
Conclusions: Good management techniques for many BPSD have been developed and are being implemented by care providers. The present study has the potential to inform researchers and care providers in Japan about the types of management techniques in current use, as well as areas of potential need for staff training.
INTRODUCTION
- Top of page
- Abstract
- INTRODUCTION
- METHODS
- RESULTS
- DISCUSSION
- ACKNOWLEDGMENTS
- REFERENCES
Japan is grappling with the consequences of an aging population and a low birth rate. An increasing number of old people, and their medical requirements, cannot be managed by their families in their homes, which has been the traditional and prevalent practice in Japan. Consequently, the Japanese government established Long-Term Care Insurance (LTCI) in April 2000, and revamped it in 2004 and 2006. According to the Ministry of Health, Labor and Welfare,1 in 2006 the older population requiring long-term care numbered 4.3 million; 820 000 of these people were residents in long-term care facilities and an estimated 80% showed behavioral and psychological symptoms of dementia (BPSD). The Japanese Society for Dementia Care2 advocated standardizing care for BPSD, including creating an environment that will not induce or increase BPSD in the resident population and properly supervising people with dementia (PWD). However, the Society did not offer guidelines for actual care models.
There are several approaches for managing BPSD, such as medication and cognitive rehabilitation. Treatment with donepezil not only improves the cognitive dysfunctuion of Alzheimer's disease patients, but was also found to relieve BPSD.3 Among cognitive rehabilitation approaches, reality orientation4 and validation therapy5–7 are well-known in Japan. Some studies support the effectiveness of reality orientation, as assessed by changes in the frequency of BPSD.8 Previously PWD were treated at hospitals, but now, to control costs, they are transferred from hospitals to long-term care facilities or to home care. However, long-term care institutions had minimal experience caring for people with BPSD and people providing home care usually do not have any training in how to deal with BPSD. In Japan, care providers at long-term facilities for old people consist of nursing staff (registered nurses and assistant nurses) and care aides assisting people with activities of daily living, but not healthcare itself. There are two levels of care aides: certified care workers and care attendants. Care providers (CPs) in Japan have a diversity of educational backgrounds, licenses, and care abilities. We define CPs as both nursing staff and care aides. Some CPs have sophisticated techniques for managing BPSD in daily practice, even if they are not aware of this or trained in these techniques.
Behavioral and psychological symptoms of dementia increase work for staff and complications for patients.9 Behavioral and psychological symptoms of dementia such as wandering, resistance to care, agitation and aggression cause difficulties in caring for patients, as well as lower job satisfaction, contributing to burnout in CPs.10–13 The emotions that CPs feel in interpersonal situations may influence their intentions and behavior in caring for PWD.14 Previous studies noted that these difficulties may lead to elder abuse15 and an increased use of physical restraints.16–18 Tanaka et al. reported that there abuses occur in approximately 30% of nursing homes.19 Therefore, we clarified in our previous study that it is important that CPs should not view BPSD primarily as negative behavior, but should realize that these symptoms occur due to the disturbed peace of mind and body of PWD.20
For patients, BPSD are apt to be aggravated by the catalytic action of dementia itself and the prevalence of BPSD in the social environment, so maintaining the peace of mind of PWD is necessary in order not to increase BPSD.20 Good management should prevent aggravation21 and minimize the confusion of PWD.20
In the present study, we investigated the techniques that CPs report using in daily practice that are effective in dealing with BPSD. Our aims were to: (i) identify management techniques used by CPs for BPSD care in long-term facilities in Japan; and (ii) suggest effective management techniques for BPSD by using the association rule data mining method. More effective approaches for managing PWD may decrease BPSD, reduce the stress felt by CPs, and diminish the burden in long-term care facilities.22 Our priority was to examine what CPs report they actually do that is effective in managing BPSD as part of the care strategy for PWD, because these techniques are likely to be able to be implemented in an efficient way in long-term care facilities.
This article presents the results of two related studies that examined techniques for managing BPSD within long-term care facilities. Initial interviews were conducted to identify the management techniques used for BPSD. A qualitative analysis of the data gathered through these interviews led to the development of a questionnaire that was used with a larger CP sample to clarify the relationship between these management techniques and different specific BPSD.
DISCUSSION
- Top of page
- Abstract
- INTRODUCTION
- METHODS
- RESULTS
- DISCUSSION
- ACKNOWLEDGMENTS
- REFERENCES
This study presents management techniques for BPSD reported by CPs at long-term care facilities in Japan. The data mining method showed that management techniques differed for different BPSD and were related to the perceived difficulty of managing the specific BPSD.
Consider the techniques that are used with wandering. We had the impression that the CPs recognized through trial and error that watching PWD wandering without acting to control their behavior minimized the BPSD and that if they tried to stop the PWD from wandering, the BPSD would worsen. However, wandering also influenced the quality of life of other residents when PWD entered other residents' rooms when wandering.33 Therefore, CPs prevented trouble between residents by managing wandering mainly when the PWD entered another resident's room.20 Moreover, CPs paid close attention to protect PWD from falling, because PWD are unaware of the risk of falling.
Techniques for managing complaints suggest that CPs valued the ideas and behavior of PWD, which corresponds to the concept of person-centered care suggested by Kitwood.34 Resistance to care could be the result of misunderstandings due to cognitive dysfunction.35
The CPs cannot comply with demands to go home, therefore they used several techniques to manage PWD with this BPSD. Correction was commonly selected, along with other types of techniques, because correction should not be offered alone to PWD.
Emotional and behavioral-concordance techniques were a preferred strategy for managing difficult BPSD for most of the conditions that were examined in the present study, which suggests its importance and value among management techniques. However, these techniques require time and effort from CPs.
Needless to say, we do not accept physical restraint because it is obviously an abuse of human rights. Therefore, we think CPs should avoid this procedure and always seek an alternative when caring for PWD. However, the results indicate that physical restraints are being used in these facilities, even though this is legally restricted. In April 2004, the US Food and Drug Administration (FDA) issued a warning stating that the use of atypical antipsychotics in the elderly increased their mortality rate. In accordance with this warning, it was widely announced in Japan that antipsychotics were not indicated as a treatment for dementia.36 We must recognize that the use of psychotropic drugs is ‘off-label use’, meaning the prescription of a drug without approved official authorization. Ihara and Arai pointed out that a trial of these drugs should always be performed under careful clinical monitoring.37 Physical restraint never appeared in the active rules, suggesting that this technique does not reduce the difficulty of managing BPSD.
There were no consensus rules for managing repetitive questioning, sleep disturbances, hoarding behavior and physical aggression. This suggests that CPs tried various types of techniques for these BPSD through trial and error. Further research should evaluate the techniques used for BPSD from multiple perspectives looking at the incidence of BPSD, the daily activities of PWD, and the cost of time and effort.
The present study is limited by the lack of observational data, because the CPs reported what they would choose to do, but what they actually do was not verified independently. When people have symptoms similar to BPSD, we have to consider the background of the symptoms.38 The BPSD differ according to age,39 type of dementia,40,41 and the severity of the dementia.42 Therefore, we need to consider these factors in future studies.
Although there were associations between the perceived difficulty of managing each BPSD and the associated techniques that were used, we were unable to demonstrate any cause-and-effect relationships. It is known that difficulty in managing the different BPSD does not concur with the frequency of the symptoms.43 Therefore, we need to develop a better definition of what is ‘low difficulty’.
We used the data mining method to explore the techniques for low difficulty BPSD and obtained some active rules. However, these rules should be examined for their effectiveness in future intervention studies. We need to seek a better consensus on techniques effective for managing physical aggression, repetitive questioning, aberrant toilet behavior, and the delusion of property being stolen. In these areas, CPs' management behavior reflects trial and error, and the best choice of management techniques based on the difficulty of managing these BPSD has not been established.
The association rules of the data mining method clarified that the management techniques differ for different BPSD. This method appears to be an efficient tool for identifying the relationships between the techniques and BPSD, which traditional multivariate analyses are unable to do. We suggest that the techniques commonly used with certain BPSD are capable of minimizing the confusion felt by a PWD and maintaining their peace of mind and body, as well as facilitating a positive environment for other residents.
In conclusion, our analysis identified four types of management techniques: (i) emotional and behavior-concordance techniques; (ii) acceptance and supportive techniques; (iii) restraining techniques; and (iv) avoidance techniques. Different management techniques, and combinations of techniques, were found to vary in use and effectiveness with different BPSD. Good management techniques for many BPSD have been developed and are being implemented by care providers. The present study has the potential to inform researchers and care providers in Japan about the types of management techniques in current use, as well as areas of potential need for staff training.