• 1
    Arno PS, Levine C, Memmott MM. The economic value of informal caregiving. Health Aff (Millwood). 1999;18: 1828.
  • 2
    Covinsky KE, Eng C, Lui LY, et al. Reduced employment in caregivers of frail elders: impact of ethnicity, patient clinical characteristics, and caregiver characteristics. J Gerontol A Biol Sci Med Sci. 2001;56: M70713.
  • 3
    Manton KG, Corder LS, Stallard E. Estimates of change in chronic disability and institutional incidence and prevalence rates in the US elderly population from the 1982,1984, and 1989 National Long Term Care Survey. J Gerontol. 1993;48: S15366.
  • 4
    Fried LP, Guralnik JM. Disability in older adults: evidence regarding significance, etiology, and risk. J Am Geriatr Soc. 1997;45: 92100.
  • 5
    Levine C. Home sweet hospital: the nature and limits of private responsibilities for home health care. J Aging Health. 1999;11: 34159.
  • 6
    Levine C. The loneliness of the long-term care giver. Caring. 1999;18: 547.
  • 7
    Bourgeois MS, Schulz R, Burgio L. Interventions for caregivers of patients with Alzheimer's disease: a review and analysis of content, process, and outcomes. Int J Aging Hum Dev. 1996;43: 3592.
  • 8
    Donaldson C, Tarrier N, Burns A. The impact of the symptoms of dementia on caregivers. Br J Psychiatry. 1997;170: 628.
  • 9
    Drinka TJ, Smith JC, Drinka PJ. Correlates of depression and burden for informal caregivers of patients in a geriatrics referral clinic. J Am Geriatr Soc. 1987;35: 5225.
  • 10
    Dunkin JJ, Anderson-Hanley C. Dementia caregiver burden: a review of the literature and guidelines for assessment and intervention. Neurology. 1998;51(1 suppl 1):S5360; discussion S65–7.
  • 11
    Harwood DG, Barker WW, Cantillon M, Loewenstein DA, Ownby R, Duara R. Depressive symptomatology in first-degree family caregivers of Alzheimer disease patients: a cross-ethnic comparison. Alzheimer Dis Assoc Disord. 1998;12: 3406.
  • 12
    Haley WE, West CA, Wadley VG, et al. Psychological, social, and health impact of caregiving: a comparison of black and white dementia family caregivers and noncaregivers. Psychol Aging. 1995;10: 54052.
  • 13
    Janevic MR, Connell CM. Racial, ethnic, and cultural differences in the dementia caregiving experience: recent findings. Gerontologist. 2001;41: 33447.
  • 14
    Ory MG, Hoffman RR III, Yee JL, Tennstedt S, Schulz R. Prevalence and impact of caregiving: a detailed comparison between dementia and nondementia caregivers. Gerontologist. 1999;39: 17785.
  • 15
    Perel VD. Psychosocial impact of Alzheimer disease. JAMA. 1998;279: 10389.
  • 16
    Rankin ED, Haut MW, Keefover RW. Clinical assessment of family caregivers in dementia. Gerontologist. 1992;32: 81321.
  • 17
    Schulz R, Beach SR. Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. JAMA. 1999;282: 22159.
  • 18
    Schulz R, O'Brien AT, Bookwala J, Fleissner K. Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates, and causes. Gerontologist. 1995;35: 77191.
  • 19
    Schulz R, Williamson GM. A 2-year longitudinal study of depression among Alzheimer's caregivers. Psychol Aging. 1991;6: 56978.
  • 20
    Covinsky KE, Fortinsky RH, Palmer RM, Kresevic DM, Landefeld CS. Relation between symptoms of depression and health status outcomes in acutely ill hospitalized older persons. Ann Intern Med. 1997;126: 41725.
  • 21
    Covinsky KE, Kahana E, Chin MH, Palmer RM, Fortinsky RH, Landefeld CS. Depressive symptoms and 3-year mortality in older hospitalized medical patients. Ann Intern Med. 1999;130: 5639.
  • 22
    Clyburn LD, Stones MJ, Hadjistavropoulos T, Tuokko H. Predicting caregiver burden and depression in Alzheimer's disease. J Gerontol B Psychol Sci Soc Sci. 2000;55: S213.
  • 23
    Livingston G, Manela M, Katona C. Depression and other psychiatric morbidity in carers of elderly people living at home. BMJ. 1996;312 : 1536.
  • 24
    Yaffe K, Fox P, Newcomer R, et al. Patient and caregiver characteristics and nursing home placement in patients with dementia. JAMA. 2002;287: 20907.
  • 25
    Fox P, Newcomer R, Yordi C, Arnsberger P. Lessons learned from the Medicare Alzheimer's Disease Demonstration. Alzheimer Dis Assoc Disord. 2000;14: 8793.
  • 26
    Newcomer R, Spitalny M, Fox P, Yordi C. Effects of the Medicare Alzheimer Disease Demonstration on the use of community-based services. Health Serv Res. 1999;34: 64567.
  • 27
    Newcomer R, Yordi C, DuNah R, Fox P, Wilkinson A. Effects of the Medicare Alzheimer's Disease Demonstration on caregiver burden and depression. Health Serv Res. 1999;34: 66989.
  • 28
    Folstein MF, Folstein SE, McHugh PR. “Mini-mental state.” A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res. 1975;12: 18998.
  • 29
    Katz S, Ford AB, Moskowitz RW, Jackson BA, Jaffe MW. Studies of illness in the aged: the index of ADL: a standarized measure of biological and psychosocial function. JAMA. 1963;185: 9149.
  • 30
    Lawton MP, Moss M, Fulcomer M, Kleban MH. A research and service oriented multilevel assessment instrument. J Gerontol. 1982;37: 919.
  • 31
    Sheikh J, Yesavage JA. Geriatric Depression Scale (GDS): recent evidence and development of a shorter version. Clin Gerontol. 1986;6: 16573.
  • 32
    Yesavage JA, Brink TL, Rose TL, et al. Development and validation of a geriatric depression screening scale: a preliminary report. J Psychiatr Res. 1982;17: 3749.
  • 33
    Gerety MB, Williams JW Jr, Mulrow CD, et al. Performance of case-finding tools for depression in the nursing home: influence of clinical and functional characteristics and selection of optimal threshold scores. J Am Geriatr Soc. 1994;42: 11039.
  • 34
    Burke WJ, Roccaforte WH, Wengel SP. The short form of the Geriatric Depression Scale: a comparison with the 30-item form. J Geriatr Psychiatry Neurol. 1991;4: 1738.
  • 35
    Whooley MA, Browner WS. Association between depressive symptoms and mortality in older women. Study of Osteoporotic Fractures Research Group. Arch Intern Med. 1998;158: 212935.
  • 36
    Gonzales E. Resourcefullness, appraisals, and coping effects of family caregivers. Issues Ment Health Nurs. 1997;18: 20927.
  • 37
    Cox C, Monk A. Strain among caregivers: comparing the experiences of African American and white caregivers seeking Alzheimer's assistance. Int J Aging Human Dev. 1996;43: 93105.
  • 38
    Kessler R, McGonagle K, Zhao S, et al. Lifetime and 12-month prevalence of DSM-III-R psychiatric disorders in the United States. Arch Gen Psychiatry. 1994;51: 819.
  • 39
    Aranda MP, Knight BG. The influence of ethnicity and culture on the caregiver stress and coping process: a sociocultural review and analysis. Gerontologist. 1997;37: 34254.
  • 40
    Hinton WL, Levkoff S. Constructing Alzheimer’s: narratives of lost identities, confusion and loneliness in old age. Cult Med Psychiatry. 1999;23: 45375.
  • 41
    Ortiz A, Simmons J, Hinton WL. Locations of remorse and homelands of resilience: notes on grief and sense of loss of place of Latino and Irish-American caregivers of demented elders. Cult Med Psychiatry. 1999;23: 477500.
  • 42
    Williamson GM, Schulz R. Relationship orientation, quality of prior relationship, and distress among caregivers of Alzheimer's patients. Psychol Aging. 1990;5: 5029.
  • 43
    Karlawish JH, Casarett D, Klocinski J, Clark CM. The relationship between caregivers’ global ratings of Alzheimer's disease patients’ quality of life, disease severity, and the caregiving experience. J Am Geriatr Soc. 2001;49: 106670.
  • 44
    Mace N, Rabins P. The 36-Hour Day. 3rd edn. Baltimore: Johns Hopkins University Press; 1999.
  • 45
    Mittelman MS, Ferris SH, Shulman E, et al. A comprehensive support program: effect on depression in spouse-caregivers of AD patients. Gerontologist. 1995;35: 792802.