• 1
    Institute of Medicine. Improving the 21st Century Healthcare System. Crossing the Quality Chasm: A New Healthcare System for the 21st Century. Washington, DC: National Academy Press; 2001.
  • 2
    Strull WM, Lo B, Charles B. Do patients want to participate in medical decision-making? JAMA. 1984;252: 29904.
  • 3
    Guadagnoli E, Ward P. Patient participation in decision-making. Soc Sci Med. 1998;47: 32939.
  • 4
    Charles CA, Whelan T, Gafni A, Willan A, Farrell S. Shared treatment decision making: what does it mean to physicians? J Gen Clin Oncol. 2003;21: 93236.
  • 5
    Charles CA, Gafni A, Whelan T. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med. 1999;49: 65161.
  • 6
    Frosch D, Kaplan R. Shared decision-making in clinical medicine: past research and future directions. Am J Prev Med. 1999;17: 28594.
  • 7
    Mahler H, Kulik J. Health care involvement preferences and social-emotional recovery of male coronary artery bypass patients. Health Psychol. 1991;10: 399408.
  • 8
    Kaplan SH, Greenfield S, Ware JE. Assessing the effects of physician-patient interactions on outcomes of chronic disease. Med Care. 1989;27 (suppl 3): S110S127.
  • 9
    Stewart MA. Effective physician-patient communication and health outcomes: a review. Can Med Assoc J. 1995;152: 142333.
  • 10
    Waterworth S, Luker K. Reluctant collaborators: do patients want to be involved in decisions concerning care? J Adv Nurs. 1990;15: 4237.
  • 11
    Robinson A, Thomson R. Variability in patient preferences for participating in medical decision-making: implication for the use of decision support tools. Qual Health Care. 2001;10 (suppl i): 348.
  • 12
    Deber R. Physicians in health care management: 8. The patient-physician partnership: Decision-making, problem solving and the desire to participate. Can Med Assoc J. 1994;151: 4237.
  • 13
    Deber R. Physicians in health care management: 7. The patient-physician partnership: changing roles and the desire for information. Can Med Assoc J. 1994;151: 1716.
  • 14
    Blanchard C, Labrecque M, Ruckdeschel J. Information and decision making preferences of hospitalized adult cancer patients. Soc Sci Med. 1988;27: 113945.
  • 15
    Quill TE. Partnership in patient care: a contractual approach. Ann Intern Med. 1983;98: 22834.
  • 16
    Faden R, Becker C, Lewis C, Freeman J, Faden A. Disclosure of information to patients in medical care. Med Care. 1981;19: 71833.
  • 17
    Cassileth B, Zupris R, Sutton-Smith K, March V. Information and participation preferences among cancer patients. Ann Intern Med. 1980;92: 8326.
  • 18
    Louis Harris & Associates. Views of Informed Consent and Decision-making: Parallel Surveys of Physicians and the Public. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research: Making Health Care Decisions. Washington, DC: Government Printing Office; 1982: 17316.
  • 19
    Young G, Materko M, Desai K. Patient satisfaction with hospital care. Med Care. 2000;38: 32534.
  • 20
    Deber R, Kraetschmer N, Irvine J. What role do patients wish to play in treatment decision-making? Arch Intern Med. 1996;156: 141420.
  • 21
    Kaplan SH, Greenfield S, Gandek B, Roger W, Ware JE. Characteristics of physicians with participatory decision-making styles. Ann Intern Med. 1996;124: 497504.
  • 22
    Krupat E, Putman S, Yaeger C. The fit between doctor and patients: can it be measured? J Gen Intern Med. 1996;11 (suppl): 134.
  • 23
    Krupat E, Hiam C, Fleming M, Freeman P. Patient-centeredness and its correlates among first year medical students. Int J Psychiatry Med. 1999;29: 34756.
  • 24
    Krupat E, Rosenkranz S, Yeager C, Barnard K, Putnam S, Inui T. The practice orientations of physicians and patients: the effect of doctor-patient congruence on satisfaction. Patient Educ Couns. 2000;39: 4959.
  • 25
    Krupat E, Bell RA, Kravitz RL, Thom D, Azari R. Patient role orientation, doctor-patient fit, and visit satisfaction. Psychol Health. 2000;15: 70719.
  • 26
    Krupat E, Bell RA, Kravitz RL, Thom D, Azari R. When physicians and patients think alike: patient centered beliefs and their impact on satisfaction and trust. J Fam Pract. 2001;50: 105762.
  • 27
    Davis JA, Smith TW, Marsden PV. Appendix A: Sampling Design and Weighting. General Social Surveys, 1972–2000: Cumulative Codebook. Chicago, IL: National Opinion Research Center; 2002.
  • 28
    Nayfield S, Bongiovanni G, Alcioti M, Fischer R, Bergner L. Statutory requirements for disclosure of breast cancer treatment alternatives. J Natl Cancer Inst. 1994;86: 12028.
  • 29
    Nattinger AB, Hoffman R, Shapiro R, Gottlieb M, Goodwin J. The effect of legislative requirements on the use of breast-conserving surgery. N Engl J Med. 1996;335: 103540.
  • 30
    Stiggelbout A, Kiebert G. Patient preferences regarding information and participation in clinical decision-making. Can Med Assoc J. 1997;157: 3839.
  • 31
    Roter DL, Hall JA, Aoki Y. Physician gender effects in medical communication. A meta-analytic review. JAMA. 2002;288: 75664.
  • 32
    Eagly AH, Johannesen-Schmidt MC, Van Engen ML. Transformational, transactional, and laissez-faire leadership styles: a meta-analysis comparing women and men. Psychol Bull. 2003;129: 56991.
  • 33
    Elderkin-Thompson V, Waitzin H. Differences in clinical communication by gender. J Gen Intern Med. 1999;14: 11221.
  • 34
    Pandey S, Hart J, Tiwary S. Women's health and the Internet: understanding emerging trends and implications. Soc Sci Med. 2003;56: 17992.
  • 35
    Mazur D, Hickman D. Patients' preference for risk disclosure and role in the decision-making for invasive medical procedures. J Gen Intern Med. 1997;12: 1147.
  • 36
    Ayanian J, Cleary P, Weissman J, Epstein A. The effects of race of patients' preferences on racial differences in access to renal transplantation. N Engl J Med. 1999;341: 16619.
  • 37
    Einbinder L, Schulman K. The effect of race on the referral process for invasive cardiac procedures. Med Care Res Rev. 2000;57 (suppl): 16280.
  • 38
    Hannan E, Van Ryn M, Burke J, et al. Access to coronary artery bypass surgery by race/ethnicity and gender among patients who are appropriate for surgery. Med Care. 1999;37: 6877.
  • 39
    Maynard C, Fisher LD, Passamani ER, Pullum T. Black patients in the Coronary Artery Surgery Study (CASS): race and clinical decision making. Am J Public Health. 1986;76: 14468.
  • 40
    Etchason J, Armour B, Ofli E, et al. Racial and ethnic disparities in health care. JAMA. 2001;285: 883.
  • 41
    Fiscelle K, Franks P, Gold M, Clancy C. Inequality in quality: addressing socioeconomic, racial, and ethnic disparities in health care. JAMA. 2000;283: 257984.
  • 42
    Epstein A, Taylor W, Seage G. Effects of patients' socioeconomic status and physicians' training and practice on patient-doctor communication. Am J Prev Med. 1995;78: 1016.
  • 43
    Van Ryn M. Research on the provider contribution to race/ethnicity disparities in medical care. Med Care. 2002;40 (suppl): I-140I-151.
  • 44
    Schulman K, Berlin J, Harless W, et al. The effect of race and sex on physicians' recommendations for cardiac catheterization. N Engl J Med. 1999;340: 61826. Erratum: N Engl J Med. 1999;340:1130..
  • 45
    Cooper-Patrick L, Gallo JJ, Gonzales JJ, et al. Race, gender and partnership in the patient relationship. JAMA. 1999;282: 58390.
  • 46
    Rosen P, Anell A, Hjortsberg C. Patient views on choice and participation in primary health care. Health Policy. 2001;55: 1218.
  • 47
    Catalan J, Brener N, Andrews H, et al. Whose health is it? Views about decision-making and information-seeking from people with HIV infection and their professional careers. AIDS Care. 1994;6: 34956.
  • 48
    Inglehart R. Post-materialist in an environment of insecurity. Am Polit Sci Rev. 1981;75: 880900.
  • 49
    Beisecker A. Aging and the desire for information and input in medical decisions: patient consumerism in medical encounters. Gerontologist. 1988;28: 33055.
  • 50
    Degner L, Sloan J. Decision-making. J Clin Epidemiol. 1992;45: 94150.
  • 51
    Greenfield S, Kaplan R, Ware JE. Expanding patient involvement in care: effects on patient outcomes. Ann Intern Med. 1985;102: 5208.
  • 52
    Greenfield S, Kaplan SH, Ware JE, Yano EM, Frank HJ. Patient's participation in medical care: effects on blood sugar control and quality of life in diabetes. J Gen Intern Med. 1988;3: 44857.
  • 53
    Rost K, Flavin K, Cole K. Change in metabolic control and function status after hospitalization: impact of patient activation intervention in diabetic patients. Diabetes Care. 1991;14: 8819.
  • 54
    Ashcroft J, Leinster S, Slade P. Mastectomy vs breast conservation: psychological effects of patient choice of treatment. In: WatsonM, CreerS, eds. Psychological Issues in Malignant Diseases. Oxford, UK: Pergamon Press; 1986: 5571.
  • 55
    Fallowfield L, Hall A, Maguire P, Baum M, A'Hern R. Psychological effects of being offered choice of surgery for breast cancer. BMJ. 1994;309: 448.
  • 56
    Brody D. The patient's role in clinical decision-making. Ann Intern Med. 1980;93: 71822.
  • 57
    Mendonca P, Brehm S. Effects of choice on behavioural treatment of overweight children. J Soc Clin Psychol. 1983;1: 34358.
  • 58
    Arora N, McHorney C. Patient preferences for medical decision-making: who really wants to participate? Med Care. 2000;38: 32541.
  • 59
    Ende J, Kazis L, Ash A, Moskowitz M. Measuring patients' desire for autonomy: decision-making and information-seeking preferences among medical patients. J Gen Intern Med. 1989;4: 2330.