• 1
    Spilker B. Quality of life and pharmacoeconomics in clinical trials. 2nd edition. Philadelphia : Lippincott-Raven, 1996.
  • 2
    Dodrill CB, Batzel LW, Queisser HR, Temkin NR. An objective method for the assessment of psychological and social problems among epileptics. Epilepsia 1980;21:12335.
  • 3
    Chaplin JE, Yepez Lasso R, Shorvon SD, Floyd M. National general practice study of epilepsy: the social and psychological effects of a recent diagnosis of epilepsy. Br Med J 1992;304:14168.
  • 4
    Vickrey BG, Hays RD, Graber J, Rausch R, Engel J, Brook RH. A health-related quality of life instrument for patients evaluated for epilepsy surgery. Med Care 1992;30:299319.
  • 5
    Baker GA, Smith DF, Dewey M, Jacoby A, Chadwick DW. The initial development of a health-related quality of life model as an outcome measure in epilepsy. Epilepsy Res 1993;16:6581.
  • 6
    Devinsky O, Vickrey BG, Cramer J, et al. Development of the quality of life in epilepsy inventory. Epilepsia 1995;36:1089104.
  • 7
    Gilliam F, Kuzniecky R, Faught E, Black L, Carpenter G, Schrodt R. Patient-validated content of epilepsy specific quality of life measurement. Epilepsia 1997;38:2336.
  • 8
    Schneider JW, Conrad P. Having epilepsy: the experience and control of illness, Philadelphia : Temple University Press, 1983.
  • 9
    Scambler G. Epilepsy. London : Tavistock, 1989.
  • 10
    Cramer JA. Quality of Life Assessment for People with Epilepsy. Quality of Life and Pharmacoeconomics in Clinical Trials 1996;94:90918.
  • 11
    Corbin JM, Strauss AL. A nursing model for chronic illness management based upon the trajectory framework. Scholarly Inquiry for Nursing Practice 1991;5:15574.
  • 12
    Duncan JS, Sander JWAS. The Chalfont Seizure Severity Scale. J Neurol Neurosurg Psychiatry 1991;54:8736.
  • 13
    Baker GA, Smith DF, Dewey M, Morrow J, Crawford PM, Chadwick DW. The development of a seizure severity scale as an outcome measure in epilepsy. Epilepsy Res 1991;8:24551.
  • 14
    Smith DS, Baker GA, Davies G, et al. Outcomes of add-on treatment with lamotrigine in partial epilepsy. Epilepsia 1993;34:31222.
  • 15
    Kline Leidy N, Rentz AM, Grace EM. Evaluating health-related quality of life outcomes in clinical trials of antiepileptic drug therapy. Epilepsia 1998;39:96577.
  • 16
    Jacoby A, Buck D, Chadwick DW. Impact of newly diagnosed seizures and epilepsy: findings from a prospective study. Epilepsia 1997;38:S104.
  • 17
    Jacoby A, Johnson AL, Chadwick DW. Psychosocial outcomes of antiepileptic drug discontinuation. Epilepsia 1992;33:112331.
  • 18
    Baker GA, Jacoby A, Smith D, Dewey M, Johnson A, Chadwick D. Quality of life in epilepsy: the Liverpool initiative. In: TrimbleMR, DodsonWE, eds. Epilepsy and quality of life. New York : Raven Press Ltd., 1994.
  • 19
    UK Medical Research Council Multicentre Study of Early Epilepsy and Single Seizures (MESS) Study Protocol. Chadwick D, personal communication.
  • 20
    Pope C, Mays N. Reaching the parts other methods cannot reach: an introduction to qualitative methods in health and health services research. Br Med J 1995;311:425.
  • 21
    Kuzel AJ. Sampling in qualitative inquiry. In: CrabtreeBF, MillerWI, eds. Doing qualitative research. Newbury Park , CA : Sage Publications, 1992.
  • 22
    Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand 1983;67:36170.
  • 23
    Anderson R. The aftermath of stroke. Cambridge : Cambridge University Press, 1992.
  • 24
    Baker GA, Jacoby A, Francis P, Chadwick DW. The Liverpool adverse drug events profile. Epilepsia 1995;36:S59.
  • 25
    Pearlin L, Schooler C. The structure of coping. J Health Soc Behav 1978;19:221.
  • 26
    Aldenkamp AP, Baker GA. The Neurotoxicity Scale II: results of a patient-based scale assessing neurotoxicity in patients with epilepsy. Epilepsy Res 1997;27:16573.
  • 27
    Jacoby A. Felt versus enacted stigma: a concept revisited: evidence from a study of people with epilepsy in remission. Soc Sci Med 1994;38:26974.
  • 28
    Martin J, Meltzer H, Elliot D. Prevalence of disability among adults. London : HMSO, 1988.
  • 29
    Ware JE. SF-36 Health survey. Manual & interpretation guide. Boston : Nimrod Press, 1993.
  • 30
    Jacoby A, Baker GA, Steen N, Chadwick DW. The clinical course of epilepsy and its psychosocial correlates: findings from a UK community study. Epilepsia 1996;37:14861.
  • 31
    Likert RA. A technique for the measurement of attitudes. Arch Psychol (Frankf) 1932;140:5.
  • 32
    Ware JE, Harris W, Gandek B, et al. MAP-R for Windows: user manual. Boston : The Health Institute, New England Medical Center, 1998.
  • 33
    Campbell DT, Fiske DW. Convergent and discriminant validation by the multitrait multimethod matrix. Psychol Bull 1959;56:85105.
  • 34
    Howard KL, Forehand GC. A method for correcting item-total correlations for the effect of relevant item inclusion. Educ Psychol Meas 1962;22:731.
  • 35
    Cronbach LJ. Coefficient alpha and the internal structure of tests. Psychometrika 1951;16:297334.
  • 36
    McDowell I, Newell C. Measuring health: a guide to rating scales and questionnaires. Oxford : Oxford University Press, 1996.
  • 37
    Jaeschke R, Guyatt G. How to develop and validate a new quality of life instrument. In: SpilkerB, ed. Quality of life assessments in clinical trials. New York : Raven Press, 1990.
  • 38
    Rapp S, Shumaker S, Smith T, Gibson P, Berzon R, Hoffman R. Adaptation and evaluation of the Liverpool seizure severity scale and Liverpool quality of life battery for American epilepsy patients. Qual Life Res 1998;7:35363.
  • 39
    Jacoby A. Epilepsy and the quality of everyday life: findings from a study of people with well-controlled epilepsy. Soc Sci Med 1992; 43:65766.