Reaction to a Dementia Diagnosis in Individuals with Alzheimer's Disease and Mild Cognitive Impairment

Authors

  • Brian D. Carpenter PhD,

    1. From the *Department of Psychology, Washington University, St. Louis, Missouri, Division of Biostatistics, Washington University, St. Louis, Missouri, Department of Neurology and Alzheimer's Disease Research Center, Washington University, St. Louis, Missouri
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  • Chengjie Xiong PhD,

    1. From the *Department of Psychology, Washington University, St. Louis, Missouri, Division of Biostatistics, Washington University, St. Louis, Missouri, Department of Neurology and Alzheimer's Disease Research Center, Washington University, St. Louis, Missouri
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  • Emily K. Porensky MA,

    1. From the *Department of Psychology, Washington University, St. Louis, Missouri, Division of Biostatistics, Washington University, St. Louis, Missouri, Department of Neurology and Alzheimer's Disease Research Center, Washington University, St. Louis, Missouri
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  • Monica M. Lee MA,

    1. From the *Department of Psychology, Washington University, St. Louis, Missouri, Division of Biostatistics, Washington University, St. Louis, Missouri, Department of Neurology and Alzheimer's Disease Research Center, Washington University, St. Louis, Missouri
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  • Patrick J. Brown MA,

    1. From the *Department of Psychology, Washington University, St. Louis, Missouri, Division of Biostatistics, Washington University, St. Louis, Missouri, Department of Neurology and Alzheimer's Disease Research Center, Washington University, St. Louis, Missouri
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  • Mary Coats RN,

    1. From the *Department of Psychology, Washington University, St. Louis, Missouri, Division of Biostatistics, Washington University, St. Louis, Missouri, Department of Neurology and Alzheimer's Disease Research Center, Washington University, St. Louis, Missouri
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  • David Johnson PhD,

    1. From the *Department of Psychology, Washington University, St. Louis, Missouri, Division of Biostatistics, Washington University, St. Louis, Missouri, Department of Neurology and Alzheimer's Disease Research Center, Washington University, St. Louis, Missouri
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  • John C. Morris MD

    1. From the *Department of Psychology, Washington University, St. Louis, Missouri, Division of Biostatistics, Washington University, St. Louis, Missouri, Department of Neurology and Alzheimer's Disease Research Center, Washington University, St. Louis, Missouri
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Address correspondence to Brian D. Carpenter, PhD, Department of Psychology, Campus Box 1125, Washington University, St. Louis, MO 63130. E-mail: bcarpenter@wustl.edu

Abstract

OBJECTIVES: To examine short-term changes in depression and anxiety after receiving a dementia diagnosis.

DESIGN: Pre/post survey design.

SETTING: Alzheimer's Disease Research Center.

PARTICIPANTS: Ninety individuals and their companions.

MEASUREMENTS: Fifteen-item Geriatric Depression Scale and 20-item “state” version of the State-Trait Anxiety Inventory.

RESULTS: Sixty-nine percent of the individuals were diagnosed with dementia; two-thirds of those were in the earliest symptomatic stages of dementia that, in other settings, is considered to represent mild cognitive impairment. No significant changes in depression were noted in individuals or their companions, regardless of diagnostic outcome or dementia severity. Anxiety decreased substantially after diagnostic feedback in most groups.

CONCLUSION: Disclosure of a dementia diagnosis does not prompt a catastrophic emotional reaction in most people, even those who are only mildly impaired, and may provide some relief once an explanation for symptoms is known and a treatment plan is developed.

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