Agreement Between Older Persons and Their Surrogate Decision-Makers Regarding Participation in Advance Care Planning

Authors

  • Terri R. Fried MD,

    1. From the *Department of Medicine and §Program on Aging, School of Medicine, Yale University, New Haven, Connecticut; Clinical Epidemiology Research Center, Veterans Affairs Connecticut Healthcare System, West Haven, Connecticut; and Cancer Prevention Research Center, University of Rhode Island, Kingston, Rhode Island.
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  • Colleen A. Redding PhD,

    1. From the *Department of Medicine and §Program on Aging, School of Medicine, Yale University, New Haven, Connecticut; Clinical Epidemiology Research Center, Veterans Affairs Connecticut Healthcare System, West Haven, Connecticut; and Cancer Prevention Research Center, University of Rhode Island, Kingston, Rhode Island.
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  • Mark L. Robbins PhD,

    1. From the *Department of Medicine and §Program on Aging, School of Medicine, Yale University, New Haven, Connecticut; Clinical Epidemiology Research Center, Veterans Affairs Connecticut Healthcare System, West Haven, Connecticut; and Cancer Prevention Research Center, University of Rhode Island, Kingston, Rhode Island.
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  • John R. O'Leary MA,

    1. From the *Department of Medicine and §Program on Aging, School of Medicine, Yale University, New Haven, Connecticut; Clinical Epidemiology Research Center, Veterans Affairs Connecticut Healthcare System, West Haven, Connecticut; and Cancer Prevention Research Center, University of Rhode Island, Kingston, Rhode Island.
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  • Lynne Iannone MA

    1. From the *Department of Medicine and §Program on Aging, School of Medicine, Yale University, New Haven, Connecticut; Clinical Epidemiology Research Center, Veterans Affairs Connecticut Healthcare System, West Haven, Connecticut; and Cancer Prevention Research Center, University of Rhode Island, Kingston, Rhode Island.
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Address correspondence to Terri R. Fried, CERC 151B, VA Connecticut Healthcare System, 950 Campbell Avenue, West Haven, CT 06516. E-mail: terri.fried@yale.edu

Abstract

OBJECTIVES: To examine agreement between older persons and their surrogates regarding participation in advance care planning (ACP).

DESIGN: Observational cohort study.

SETTING: Community.

PARTICIPANTS: Persons aged 65 and older and the individual they identified as most likely to make treatment decisions on their behalf.

MEASUREMENTS: Older persons were asked about participation in four activities: completion of living will, completion of healthcare proxy, communication regarding views about life-sustaining treatment, and communication regarding views about quality versus quantity of life. Surrogates were asked whether they believed the older person had completed these activities.

RESULTS: Of 216 pairs, 81% agreed about whether a living will had been completed (κ=0.61, 95% confidence interval (CI) 0.51–0.72). Only 68% of pairs agreed about whether a healthcare proxy had been completed (κ=0.39, 95% CI 0.29–0.50), 64% agreed about whether they had communicated regarding life-sustaining treatment (κ=0.22, 95% CI 0.09–0.35), and 62% agreed about whether they had communicated regarding quality versus quantity of life (κ=0.23, 95% CI 0.11–0.35).

CONCLUSION: Although agreement between older persons and their surrogates regarding living will completion was good, agreement about participation in other aspects of ACP was fair to poor. Additional study is necessary to determine who is providing the most accurate report of objective ACP components and whether agreement regarding participation in ACP is associated with greater shared understanding of patient preferences.

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