Ethnogeriatrics and Special Populations
Quality of Life in Late-Life Disability: “I Don't Feel Bitter Because I Am in a Wheelchair”
Article first published online: 30 JAN 2012
© 2012, Copyright the Authors Journal compilation © 2012, The American Geriatrics Society
Journal of the American Geriatrics Society
Volume 60, Issue 3, pages 569–576, March 2012
How to Cite
King, J., Yourman, L., Ahalt, C., Eng, C., Knight, S. J., Pérez-Stable, E. J. and Smith, A. K. (2012), Quality of Life in Late-Life Disability: “I Don't Feel Bitter Because I Am in a Wheelchair”. Journal of the American Geriatrics Society, 60: 569–576. doi: 10.1111/j.1532-5415.2011.03844.x
- Issue published online: 12 MAR 2012
- Article first published online: 30 JAN 2012
- National Institute on Aging
- National Institutes of Health
- National Center for Research Resources UCSF-CTSI. Grant Number: UL1 RR024131
- Atlantic Philanthropies
- the Society of General Internal Medicine
- the John A. Hartford Foundation
- Association of Specialty Professors
- quality of life;
To determine perceived quality of life in a diverse population of elderly adults with late-life disability.
Qualitative cross-sectional study.
Community-dwelling participants were recruited from San Francisco's On Lok Lifeways program, the first Program of All-inclusive Care for the Elderly. On Lok enrollees meet Medicaid criteria for nursing home placement.
Sixty-two elderly adults with a mean age of 78 and a mean 2.4 activity of daily living dependencies and 6.6 instrumental activity of daily living dependencies were interviewed. Respondents were 63% female, 24% white, 19% black, 18% Latino, 32% Chinese American, and 6% other race.
Elderly adults who scored higher than 17 points on the Mini-Mental State Examination were interviewed. Interviews were conducted in English, Spanish, and Cantonese. Respondents were asked to rate their overall quality of life on a 5-point scale. Open-ended questions explored positive and negative aspects of participants’ daily experiences. Interviews were analyzed using modified grounded theory and digital coding software.
Eighty-seven percent of respondents rated their quality of life in the middle range of the quality-of-life spectrum (fair to very good). Themes were similar across ethnic groups. Most themes could be grouped into four domains that dependent elderly adults considered important to their quality of life: physical (e.g., pain), psychological (e.g., depression), spiritual or religious (e.g., religious coping), and social (e.g., life-space). Dignity and a sense of control were identified as themes that are the most closely tied to overall quality of life.
Factors that influence quality of life in late-life disability were similar across ethnic groups. As the number of elderly adults from diverse backgrounds with late life disability increases in the United States, interventions should be targeted to maximize daily sense of control and dignity.