Supported in part by a supplemental award to P30 CA08748 to conduct research focusing on cancer and the family issues, and T32 CA09461 providing support for training pre- and postdoctoral fellows in psycho-oncology research. We gratefully acknowledge the contributions of Sandy Hermele, B.S., for her assistance with data collection and entry; Louis Primavera, Ph.D., for his statistical consultation; Ze'ev Neuwirth, M.D., Golda Sadowsky, Ph.D., Robert Stewart, Ph.D., and Andres Torrens, M.S.W., who served as MFG facilitators; Abbe S. Steinglass, M.A., who designed the family collage component of the MFG protocol; the physicians, nurses, and social workers of the MSKCC Head and Neck Disease Management Team; and the participating families who shared their cancer stories with our research group.
Interest in and Barriers to Participation in Multiple Family Groups Among Head and Neck Cancer Survivors and Their Primary Family Caregivers
Article first published online: 28 APR 2004
Volume 43, Issue 2, pages 195–208, June 2004
How to Cite
Ostroff, J., Ross, S., Steinglass, P., Ronis-tobin, V. and Singh, B. (2004), Interest in and Barriers to Participation in Multiple Family Groups Among Head and Neck Cancer Survivors and Their Primary Family Caregivers. Family Process, 43: 195–208. doi: 10.1111/j.1545-5300.2004.04302005.x
- Issue published online: 28 APR 2004
- Article first published online: 28 APR 2004
This study examined interest in and barriers to participation in a multiple family group intervention (MFG) for adult cancer survivors and their family caregivers. The intervention was developed to assist families in coping with the persistent challenges of cancer diagnosis, treatment, and rehabilitation. Eighty eligible families having a member diagnosed and treated for cancers of the head and neck region completed a baseline quality of life survey consisting of standardized psychosocial measures, and then all patients and their families were invited to participate in a day-long multiple family group program. However, despite extensive recruitment efforts and accommodations to address anticipated barriers for nonparticipation, only 15 of the 80 (19%) eligible families agreed to attend the MFG workshop. Post-MFG, participating families reported high levels of program satisfaction and usefulness. These findings are discussed in the context of increasing the use of family-focused interventions in cancer care settings.