Knowledge Generation for the HIV-Affected Family


  • Marie-Annette Brown

    Corresponding author
    1. Marie-Annette Brown, RN, PhD, FAAN, Psi-At-Large, is Professor, Department of Family and Child Nursing, University of Washington, Seattle, WA. An earlier version of this paper was presented at the 1994 American Academy of Nursing HIV Summit and appears in the conference proceedings.
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Dr. Brown, Department of Family and Child Nursing, School of Nursing, University of Washington, Box 357262, Seattle, WA 981 95


Purpose: To examine the current literature about HIV-affected families in regard to knowledge development and priorities for future research.

Significance: The current view of HIV focuses largely on HIV-infected individuals. There is a paucity of relevant research and a need to make explicit the priorities for knowledge generation about HIV-affected families.

Scope: HIV family literature, 1980-1996, was reviewed and categorized and serves as the context for presenting future priorities for knowledge generation about HIV-affected families. Priorities identified were designing and testing family-level services; determining epidemiology of the phenomenon of HIV family caregiving; who gives care and why, what caregivers do, the outcomes of caregiving, quality of family care, and relationships

Conclusions: A critical need is to address in-depth the problems that have limited knowledge development about HIV-affected families. This explication of issues and questions to understand HIV-affected families can stimulate future research.