Factors That Influence Characteristics of Genetic Biobanks
Article first published online: 26 FEB 2007
Journal of Nursing Scholarship
Volume 39, Issue 1, pages 25–29, March 2007
How to Cite
Sanner, J. E. and Frazier, L. (2007), Factors That Influence Characteristics of Genetic Biobanks. Journal of Nursing Scholarship, 39: 25–29. doi: 10.1111/j.1547-5069.2007.00139.x
- Issue published online: 26 FEB 2007
- Article first published online: 26 FEB 2007
- Accepted for publication September 12, 2006.
- complex disease;
- genetic biobank;
Purpose: To identify demographic differences between patients who choose participation and patients who choose nonparticipation in genetic biobanks, and to explore reasons for nonparticipation.
Design: Prospective study of hospitalized cardiovascular patients approached to participate in a genetic biobank, 300 nonparticipants and 299 participants, in the southwestern US.
Methods: Reasons for nonparticipation were explored. Logistic regression was performed to determine if gender, race or ethnicity, or age predicted nonparticipation.
Findings: Race or ethnicity and age were significantly different between participants and nonparticipants, but gender was not. Blood-sample collection was the main reason for declining participation.
Conclusions: Minority and older adults were less likely to participate. Understanding reasons for nonparticipation in this group might aid in the development of methods used to obtain a diverse population in biobanks.