Conflicts of interest:
Perception of xeroderma pigmentosum support group members of xeroderma pigmentosum lifestyle impact
Article first published online: 6 NOV 2012
© 2012 John Wiley & Sons A/S
Photodermatology, Photoimmunology & Photomedicine
Volume 28, Issue 6, pages 338–339, December 2012
How to Cite
Hawkins, D. M., Eide, M. J. and Lim, H. W. (2012), Perception of xeroderma pigmentosum support group members of xeroderma pigmentosum lifestyle impact. Photodermatology, Photoimmunology & Photomedicine, 28: 338–339. doi: 10.1111/j.1600-0781.2012.00693.x
Henry W. Lim, MD, has served as a consultant for and received honoraria from LaRoche-Posay, Clinuvel and Procter & Gamble. He has also served as an investigator for Clinuvel.
- Issue published online: 6 NOV 2012
- Article first published online: 6 NOV 2012
- Manuscript Accepted: 1 AUG 2012
- quality of life;
- xeroderma pigmentosum
Xeroderma pigmentosum (XP) is a genetic condition, which can cause an extreme sensitivity to sunlight and an increased risk of skin cancer due to errors in DNA repair. An online survey was administered to a convenience sample of participants who were members of an online support group for XP patients and their families to determine common symptoms and quality of life. The Dermatologic Life Quality Index (DLQI) or the Children's Dermatologic Life Quality Index (CDLQI) was used depending on patient age. A total of four patients and two parents of young patients completed our survey. Quality of life as measured through the DLQI and CDLQI was moderately affected.