• 1
    Canning RD, Dew MA, Davidson S. Psychological distress among caregivers to heart transplant recipients. Soc Sci Med 1996; 42: 599608.
  • 2
    Gibson M, Houser A. Valuing the invaluable: A new look at the economic value of family caregiving. Issue Brief (Public Policy Institute – American Association of Retired Persons) 2007; IB82: 112.
  • 3
    National Alliance for Caregiving and AARP. Caregiving in the US. Bethesda, MD & Washington, DC : AARP Public Policy Institute, 2008.
  • 4
    Beach S, Schulz R, Yee J, Jackson S. Negative and positive health effects of caring for a disabled spouse: Longitudinal findings from the caregiver health effects study. Psychol Aging 2000; 15: 259271.
  • 5
    Gaugler JE, Hanna N, Linder J, et al. Cancer caregiving and subjective stress: A multi-site, multi-dimensional analysis. Psychooncology 2005; 14: 771785.
  • 6
    Halm MA, Treat-Jacobson D, Lindquist R, Savik K. Caregiver burden and outcomes of caregiving of spouses of patients who undergo coronary artery bypass graft surgery. Heart Lung 2007; 36: 170187.
  • 7
    Hauser JM, Chang C-H, Alpert H, Baldwin D, Emanuel EJ, Emanuel L. Who's caring for whom? Differing perspectives between seriously ill patients and their family caregivers. Am J Hosp Palliat Care 2006; 23: 105112.
  • 8
    Link G, Dize V, Folkemer D, Curran C. Family caregiver support: State facts at a glance. Washington, DC : National Association of State Units on Aging and National Conference of State Legislatures, 2006.
  • 9
    Lyons K, Zarit S, Sayer A, Whitlatch C. Caregiving as a dyadic process: Perspectives from caregiver and receiver. J. Gerentol Psychol Sci 2002; 57B: 195204.
  • 10
    Schulz R, Beach S. Caregiving as a risk factor for mortality: The caregiver health effects study. JAMA 1999; 282: 22152219.
  • 11
    von Kanel R, Mausbach BT, Patterson TL, et al. Increased framingham coronary heart disease risk score in dementia caregivers relative to non-caregiving controls. Gerontology 2008; 54: 131137.
  • 12
    Williamson G, Shaffer D. Relationship quality and potentially harmful behaviors by spousal caregivers: how we were then, how we are now: The family relationships in late life project. Psychol Aging 2001; 16: 217226.
  • 13
    Biegel DE, Sales E, Schulz R. Family caregiving in chronic illness: Alzheimer's disease, cancer, heart disease, mental illness, and stroke. Newbury Park, CA : Sage, 1991.
  • 14
    Porter LS, Keefe FJ, Garst J, McBride CM, Baucom D. Self-efficacy for managing pain, symptoms, and function in patients with lung cancer and their informal caregivers: Associations with symptoms and distress. Pain 2008; 137: 306315.
  • 15
    Schulz R, Newsom J, Mittelmark M, Burton L, Hirsch C, Jackson S. Health effects of caregiving: The caregiver health effects study: An ancillary study of the cardiovascular health study. Ann Behav Med 1997; 19: 110116.
  • 16
    Schulz R, O’Brien A, Bookwala J, Fleissner K. Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. Gerontologist 1995; 35: 771791.
  • 17
    Bolkhir A, Loiselle MM, Evon DM, Hayashi PH. Depression in primary caregivers of patients listed for liver or kidney transplantation. Prog Transplant 2007; 17: 193198.
  • 18
    Meltzer LJ, Rodrigue JR. Psychological distress in caregivers of liver and lung transplant candidates. Clin Psychol Med Settings 2001; 8: 173180.
  • 19
    Dew MA, Goycoolea JM, Stukas AA, et al. Temporal profiles of physical health in family members of heart transplant recipients: Predictors of health change during caregiving. Health Psychol 1998; 17: 138151.
  • 20
    Dew MA, Myaskovsky L, DiMartini AF, Switzer GE, Schulberg HC, Kormos RL. Onset, timing, and risk for depression and anxiety in family caregivers of heart transplant recipients. Psychol Med 2004; 34: 10651082.
  • 21
    Myaskovsky L, Dew MA, Switzer GE, McNulty ML, DiMartini AF, McCurry KR. Quality of life and coping strategies among lung transplant candidates and their family caregivers. Soc Sci Med 2005; 60: 23212332.
  • 22
    Cetingok M, Hathaway D, Winsett R. Contribution of post-transplant social support to the quality of life of transplant recipients. Soc Work Health Care 2007; 45: 3956.
  • 23
    Cohen M, Katz D, Baruch Y. Stress among the family caregivers of liver transplant recipients. Prog Transpl 2007 17: 4853.
  • 24
    Rodrigue J, Dimitri N, Reed A, et al. Spouse caregivers of kidney transplant patients: Quality of life and psychosocial outcomes. Prog Transpl 2010; 20: 335342.
  • 25
    Stilley C, DiMartini A, de Vera M, et al. Individual and environmental correlates and predictors of early adherence and outcomes after liver transplantation. Prog Transpl 2010; 20: 5866.
  • 26
    Wicks M, Milstead E, Hathaway D. Cetingok M. Family caregivers’ burden, quality of life, and health following patients’ renal transplantation. J Transpl Coord 1998; 8: 170176.
  • 27
    Casida J. The lived experience of spouses of patients with a left ventricular assist device before heart transplantation. Am J Crit Care 2005; 14: 145151.
  • 28
    Green MR. Coping and mental health among patients with end-stage pulmonary disease and primary caregivers. Columbus, OH : Ohio State University, 2010.
  • 29
    Lewis Claar R, Parekh PI, Palmer SM, et al. Emotional distress in quality of life in caregivers of patients awaiting lung transplant. J Psychosom Res 2005; 59: 16.
  • 30
    Rodrigue JR, Baz MA. Waiting for lung transplantation: Quality of life, mood, caregiving strain and benefit, and social intimacy of spouses. Clin Transpl 2007; 21: 722727.
  • 31
    Chaparro C, Scavuzzo M, Winton T, Keshavjee S, Kesten S. Status of lung transplant recipients surviving beyond five years. J Heart Lung Transpl 1997; 16: 511516.
  • 32
    Gross C, Savik K, Bolman R, Hertz M. Long-term health status and quality of life outcomes of lung transplant recipients. Chest 1995; 108: 15871593.
  • 33
    Gross CR, Raghu G. The cost of lung transplantation and the quality of life post-transplant. Clin Chest Med 1997; 18: 391403.
  • 34
    Limbos MM, Joyce DP, Chan CKN, Kesten S. Psychological functioning and quality of life in lung transplant candidates and recipients. Chest 1997; 112: 11651174.
  • 35
    MacNaughton K, Rodrigue J, Cicale M, Staples EM. Health-related quality of life and symptom frequency before and after lung transplantation. Clin Transpl 1998; 12: 320323.
  • 36
    Rodrigue JR, Baz MA, Kanasky WF, MacNaughton KL. Does lung transplantation improve health-related quality of life? The University of Florida experience. J Heart Lung Transpl 2005; 24: 755763.
  • 37
    TenVergert EM, Essink-Bot M-L, Geertsma A, van Enckevort PJ, de Boer WJ, van der Bij W. The effect of lung transplantation on health-related quality of life: A longitudinal study. Chest 1998; 113: 358364.
  • 38
    Dew MA, Manzetti JD, Goycoolea JM, et al. Psychosocial aspects of transplantation. In: Smith S, Ohler L, eds. Organ transplantation: Concepts, issues, practice and outcomes. New York : Medscape Transplant, WebMD, Inc., 2002.
  • 39
    Dew MA, Switzer GE, Dimartini AF, Matukaitis J, Fitzgerald MG, Kormos RL. Psychosocial assessments and outcomes in organ transplantation. Prog Transpl 2000; 10: 239259.
  • 40
    Goetzmann L, Klaghofer R, Wagner-Huber R, et al. Psychosocial vulnerability predicts psychosocial outcome after an organ transplant: Results of a prospective study with lung, liver, and bone-marrow patients. J Psychosom Res 2007; 62: 93100.
  • 41
    Myaskovsky L, Dew M, McNulty M, et al. Trajectories of change in quality of life in 12-month survivors of lung or heart transplant. Am J Transpl 2006; 6: 19391947.
  • 42
    Chisholm-Burns M, Spivey C, Wilks S. Social support and immunosuppressant therapy adherence among adult renal transplant recipients. Clin Transpl 2010 24: 312320.
  • 43
    Tong A, Howell M, Wong G, Webster A, Howard K, Craig J. The perspectives of kidney transplant recipients on medicine taking: A systematic review of qualitative studies. Nephrol Dial Transpl 2011; 26: 344354.
  • 44
    Xu J, Adeboyejo O, Wagley E, et al. Daily burdens of recipients and family caregivers after lung transplantation. Prog Transpl 2012; 22: 4148.
  • 45
    Telles-Correia D, Barbosa A, Mega I, Barroso E, Monteiro E. Psychiatric and psychosocial predictors of medical outcome after liver transplantation: A prospective, single-center study. Transpl Proc 2011; 43: 155157.
  • 46
    Einollahi B, Taheri S, Nemati E, Abbaszadeh S, Pourfarziani V, Nourbala M. Burden among caregivers of kidney transplant recipients and its associated factors. Saudi J Kid Disease Transpl 2009; 20: 3034.
  • 47
    Ware J, Snow K, Kosinski M, Gandek B. SF-36 Health Survey: Manual and interpretation guide. Boston : The Health Institute, New England Medical Center, 1993.
  • 48
    McHorney C, Ware J, Lu J. The MOS 36-item Short-Form Health Survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Med Care 1994; 32: 40–66.
  • 49
    Scheier MF, Carver CS. Optimism, coping, and health: Assessment and implications of generalized outcome expectancies. Health Psychol 1985; 4: 219247.
  • 50
    Pearlin L, Schooler C. The structure of coping. J Health So Behav 1978; 19: 221.
  • 51
    Spanier G. Measuring dyadic adjustment: New scales for assessing the quality of marriage and similar dyads. J Marriage Family 1976; 38: 15–30.
  • 52
    Dew MA, Ragni M, Nimorwicz P. Infection with human immunodeficiency virus and vulnerability to psychiatric distress: A study of men with hemophilia. Arch Gen Psychiat 1990; 47: 737744.
  • 53
    Carver C. You want to measure coping but your protocol's too long: Consider the brief COPE. Int J Behav Med 1997; 4: 92100.
  • 54
    Carver C, Scheier M, Weintraub J. Assessing coping strategies: A theoretically based approach. J Pers Soc Psychol 1989; 56: 267283.
  • 55
    Montgomery R, Gonyea J, Hooyman N. Caregiving and the experience of subjective and objective burden. Family Rel 1985; 34: 1936.
  • 56
    Whitlatch C, Zarit S, von Eye A. Efficacy of interventions with caregivers: A reanalysis. The Gerontologist 1991; 31: 914.
  • 57
    Laird N, Ware J. Random-effects models for longitudinal data. Biometrics 1982; 38: 963974.
  • 58
    SPSS. SPSS Advanced Models 11.5. Chicago, IL : SPSS Inc., 2002.
  • 59
    Tabachnick BG, Fidell LS. Using multivariate statistics (5th Edition). Boston, MA : Allyn and Bacon, 2007.
  • 60
    Peduzzi P, Concato J, Feinstein A, Holford T. Importance of events per independent variable in proportional hazards regression analysis. II. Accuracy and precision of regression estimates. J Clin Epidemiol 1995; 48: 15031510.
  • 61
    Vittinghoff E, McCulloch C. Relaxing the rule of ten events per variable in logistic and Cox regression. Am J Epidemiol 2007; 165: 710718.
  • 62
    Samsa G, Edelman D, Rothman ML, Williams GR, Lipscomb J, Matchar D. Determining clinically important differences in health status measures: A general approach with illustration to the Health Utilities Index Mark II. Pharmacoeconomics 1999; 15: 141155.
  • 63
    OPTN/SRTR. 2010 Organ Procurement and Transplantation Network (OPTN) and Scientific Registry of Transplant Recipients (SRTR) Annual Report: Transplant Data 2000–2009. Rockville, MD : Department of Health and Human Services, Health Resources and Services Administration, Healthcare Systems Bureau, Division of Transplantation, 2011.
  • 64
    Christie JD, Edwards LB, Kucheryavaya AY, et al. The registry of the International Society for Heart and Lung Transplantation: Twenty-eight adult lung and heart-lung transplant report – 2011. J Heart Lung Transpl 2011; 30: 11041122.
  • 65
    Der-Martirosian C, Kritz-Silverstein D, Barrett-Connor E. Fiver-year stability in associations of health-related quality of life measures in community-dwelling older adults: The Rancho Bernardo Study. Qual Life Res 2010; 19: 13331341.
  • 66
    Richardson J, Chan D, Risdon K, Giles C, Mulveney S, Cripss D. Does monitoring change in function in community-dwelling older adults alter outcome? A randomized controlled trial. Clin Rehab 2008; 22: 10611070.